Hello everyone, I'm new here!
 

Hello! My name is Shanda, and I'm confused on somethings my neuro told me. I'll explain my diagnosis, and hopefully someone can help me a little. In March 05, I had right side numbness, and was put in the hospital for a stroke or MS, had the LP done, and protiens were elevated. Had to learn how to walk all over again, and when I left no diagnosis given at that time.

Went to my regular dr. and she said everything came back negative for a stroke, went to neuro, and he said for MS things didn't fit right in a circle. Didn't get much better over the year so in October 06 went back to regular dr., and finally in December got back into my neuro. I had an MRI on the 14th of Dec., and went to him on the 21st., and he told me that I had new lesions on my brain, and said I had MS, with those and all my smptoms.

All the symptoms I have are MS symptoms. He scheduled me for an LP on Janurary 4th, and I went back on the 24th. On this day he told me I didn't have MS now. I'm very confused by this diagnosis. I've scheduled to go to another neuro b/c the one I see now doesn't explain anything or anwser any questions for me. He comes in the room tells you something, and is back out of the room with no explaintation for anything.

I've read that only two things need to be wrong for MS, you have to have lesions consistent that didn't happen at the same time, and you've had to have at least 2 relapses. Does this mean your LP must be positive also for you to have MS. Please help me, if anyone has any idea. I go to my new neuro Tuesday morning, so if you have any suggestions please help me.

Sorry so long, and hope not to confusing, have alot of memory loss, and can't remember what i siad two lines ago.:D

Sorry for all your problems. I have had only one lesion for ten years now and have a diagnosis of probable MS. That is an actual diagnosis. I have been on Avonex for all of those ten years and am now on disability. I have all of the clinical symptoms, protein in LP was only slightly elevated. But I have a very sympathetic neuro. I feel very blessed that I am treated with the same respect that a person with MS is. Good luck tomorrow. Come back and let us know what happened.

Hi Shanda and welcome to Neurotalk! Sorry you're having these difficulties getting a diagnosis, but it seems to be a fairly common occurence when dealing with MS. Sometimes it takes years for a positive.

I've had problems finding the right neurologist for me too. It's really important to feel comfortable with him/her and build that trust and ability to communicate.

Not much help, but just wanted to stop by and say hello. We're here for you, so let us know what happens tomorrow. Good luck!

Hi and welcome:

Sounds like you have had a rough time lately.

It also sounds like you need a new neuro. It does take a while to get a firm dx of MS sometimes.

May I suggest that if you are in the market for a neuro that you try to get to an MS clinic? They have great supports in place to help you through the rough times diagnosed or not.

All the best, :grouphug:

Thanks, for the advice! Will let you know what the new neuro says.
Greatly Appreciated!

Thank you! Will let you know what's going on.