Hello
 

Hi I am 32 years old and was diagnosed with Myasthenia b/w 18 months and 2 years of age. It wasn't until I was in my 20's I was told I actually had Congenital Myasthenia. I have controlled most symptoms with Mestinon other than the occasional double vision and weakness.
In 1998, our first son was born. I developed post pardum cardiomyopathy after his birth. I am not sure if the pregnancy weakened me or the PPCM itself did, but every two years since I have gone back in the hospital with a MG crisis.
Due to having the congenital type of mg, a Thyectomy (I know I didn't spell that right) would not benefit me. I am glad to have found this board!

Hello, Chasta!

Welcome to the board! Sorry, to hear about all your trouble, but you've come to the right place, to talk about things, or just share your troubles.

Good Luck, and hope to get to know you better!

Hi Chasta!
 

Welcome to these forums. I am very glad that you found us here. I'm not really familiar with your condition, or what it means for you, but I do believe that all sufferers of chronic illness have something very much in common. The pain and disruption it causes in their lives.

I hope you find a lot of information on this site, and make yourself some good friends to talk to who can relate to your condition. Good luck! :)

Idealist