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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Me and my crazy legs!!! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/121776-crazy-legs.html)

cindi1965 05-09-2010 09:46 PM

Me and my crazy legs!!!
 
Today started out well until we started to make the "mom" rounds....with each visit my legs would do something different...I swear they have their own personalities... does anyone else have this when multiple parts are affected?...one leg was icy cold and mottled and the other was hot and formed knots...I am really going to start videoing they because only a handful of people have seen the do this. I LOVE this crazy ride.....NOT!!!!!!

Kakimbo 05-13-2010 10:38 AM

Cindi...

YESS!!!!! I call my legs "bipolar" because they behave so differently. I hate the temperature changes and especially the mottleling and splotching. I can't handle wearing long pants because of the material brushing across my thigh. People look at me like I'm Shrek when the colors are blazing. I hate it. Also when I am covered in sweat and my teeth are chattering. SUCKS!

wswells 05-13-2010 11:07 AM

Quote:

Originally Posted by cindi1965 (Post 653100)
Today started out well until we started to make the "mom" rounds....with each visit my legs would do something different...I swear they have their own personalities... does anyone else have this when multiple parts are affected?...one leg was icy cold and mottled and the other was hot and formed knots...I am really going to start videoing they because only a handful of people have seen the do this. I LOVE this crazy ride.....NOT!!!!!!

Cindi... You are not alone. My legs look oh so pretty, I think at some point everyone with RSD has crazy conditions dealing with the ugly mottled cold or the sun burnt look that your leg is on fire. I also have it happen to my hands and arms. I guess we would be called tri-colored if we were animals.
Your friend Wendy

keep smilin 05-13-2010 02:39 PM

Quote:

Originally Posted by wswells (Post 654266)
Cindi... You are not alone. My legs look oh so pretty, I think at some point everyone with RSD has crazy conditions dealing with the ugly mottled cold or the sun burnt look that your leg is on fire. I also have it happen to my hands and arms. I guess we would be called tri-colored if we were animals.
Your friend Wendy

Wait..Me too!!!! Even right now as I speak..my pain is so high that I feel like I am drenching sweat but to the touch no sweat just shiny lookin legs and I quiever at times, like a parkinson's patient AND if anyone even looks at me..it hurts... plus my mottled legs are not pretty either... I put off showing them in public as long as possible once summer arrives... We are a group aren't we but we are a wonderful family just the same!!

Hugz, Kathy:grouphug:

Lisa in Ohio 05-13-2010 07:09 PM

At least we are patriotic, Red, White and Blue all at once! Lisa

wswells 05-15-2010 08:41 AM

Quote:

Originally Posted by Lisa in Ohio (Post 654416)
At least we are patriotic, Red, White and Blue all at once! Lisa

Lisa, thats a real good one! We could march (well not march) in the fourth of July parade! Wendy!

Kakimbo 05-15-2010 12:47 PM

How about a collective GIMP!?!

cindi1965 05-16-2010 01:08 AM

I just love you all!!! My family doctor uses the MS board on here and I told him that you all have helped me so much....he understands what I go through so much because of having MS that he has been the only dr who "gets" it!

Kakimbo 05-16-2010 01:24 AM

Wait...

I shivvvver too! What's that about? Is it meds? And the "looking at you"...I feel like I am "exposed" when I go out in public. Stores, Grocery shopping, etc. I can't handle being around people. I am afraid that they will run into me or hurt me. Even driving. I know that I' crazy for feeling this.,, but...

Kim

keep smilin 05-16-2010 06:39 AM

Quote:

Originally Posted by kim ames (Post 655104)
Wait...

I shivvvver too! What's that about? Is it meds? And the "looking at you"...I feel like I am "exposed" when I go out in public. Stores, Grocery shopping, etc. I can't handle being around people. I am afraid that they will run into me or hurt me. Even driving. I know that I' crazy for feeling this.,, but...

Kim

Kim~

You's not crazy..girl you have RSD... Oh I do the "dance" too...go figure I couldn't shake until RSD came along..It's not medicine I ma certain... as you know, I don't take medicine for my RSD...lets take this one to broadway!!

Hugz, Kathy:grouphug:


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