NeuroTalk Support Groups - Tos - surgery results

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- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - Tos - surgery results - new member (https://www.neurotalk.org/thoracic-outlet-syndrome/122635-tos-surgery-results.html)

Hi there! My daughter has had rib-resections on both sides by Dr. Freischlag. First time was such a dramatic improvement that we readily had her do the second. She is doing well. Still requires some PT and continuing exercises, but that is standard. Her blood flow is remarkably improved. We too had seen many docs before going to Dr. Freischlag. The sooner the resection is done (after a thrombosis appears) the more effective the surgery.

hello & welcome,

I saw your post on the other thread and thought it would be good to have it's own thread also. So I copied it to here.

It's nice to read of positive surgical results, we don't often get to hear of the good outcomes.

Did she mainly have the vascular version of TOS?
{blood flow & thrombosis}

Any nerve symptoms also or only the blood flow issues?

Fantastic results! Now, do not push her into make unnecessary scar tissue. She is as fragile as can be this coming year. The nerves will continue to heal (for me) for two years. So take it easy, gentle, but dependable...so crazy hypo-PT guy in there, ok?

God bless you all and thank God she made it through such a risky surgery JUST FINE, huh? JUST FINE.

It is really hard for me to "talk" into a voice thing to make my posts, and sometimes by the time they are posted they are not what I meant at all...

so this post when I read it later I thought, my God, this looks ridiculous.

First, I meant "no" hyper PT guys - you know those ones that say do it 'til it burns, or other "pushy types" cuz with TOS ANY pain with PT is not good and there is no such thing as strengthening, it's more like using the muscle to get it freed up, but not to use PT to force it into strength because that I have seen result in scar tissue damage...

And then I meant that I was so happy she got through such a scary surgery so well! But it doesn't look like that on the post...I also had the surgery and I had to think long and hard do I want to risk the phrenetic nerve and all of the other risks of surgery and I can only imagine what fear and consternation you must have had making the decision for your daughter if she was really young, or help in deciding if she is older...just had to be really hard.

So for all of you who read my posts and sometimes scratch your head, just know that I have not gone crazy, I just didn't feel like proofreading and fixing every word...

Surgery with Dr. Freischlag

Hi there-

I don't know if you are still subscribed to this thread but I thought I would give it a shot.

My girlfriend will be having TOS surgery with Dr. Freischlag soon for arterial TOS on her right side. She has similar symptoms on her left side but no objective test results showing arterial/vascular compression.

We are concerned that she will need the left side done eventually, and we don't know what it will be like in between. What was your process like for going through with the second surgery?

Thanks,
Dave

Quote:

Originally Posted by pdomingu22 (Post 656741)