car issues and shaking events
 

Since my hospitalization, car rides are making me really sick. I have to close my eyes and I cannot tell which plane I am in, like vertigo. When the car stops, everything is normal again except I cannot walk properly. My neurology seems totally disorganized. My ENT said it looked neuro not dizzy to him. He said I would be on the floor vomiting if it was inner ear related. He had ordered an ENG but it's not for a month. My right knee would not hold and was giving out and I was shaky and jittery. I look a bit drunk and with Parkinsons, no balance. Then after about 2 1/2 hours, everything came back into place and I could walk properly again. After being shook around by the MRI machine, I had the same experience where I couldn't walk without assistance but it only lasted about 30 minutes.

Has anyone experienced any issues like this, car related or otherwise?

debra

Debra,

When I get "tilty" (for me it's from the waist up) I walk funny. When I get really tilty, it sometimes makes me a little "car sick" even if I'm not in the car. If I rest enough, it goes away. In my case, it's not vertigo--it's back and side muscles that just don't hold me up. Then again, I'm the one whose neuro thinks she doesn't have MG at all, so my experience may not be much help to you....

Vertigo is when things seem to be moving when they're really not.

Abby

yes. some variation of what you describe. it is mostly accelaration or a fast and unexpected change of position (eg-a curving road), more then speed that seems to make all my MG symptoms worse. so even if someone takes me too fast in a wheelchair, or hospital bed, in will make me feel this way. I really don't have any good explanation for that, but have learned to avoid those situations most of the time.

alice