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-   -   for de novo or newly diagnosed (https://www.neurotalk.org/parkinson-s-disease/123275-de-novo-newly-diagnosed.html)

jeanb 05-30-2010 10:16 AM

for de novo or newly diagnosed
 
I know there are a lot of lurkers, or pwp who visit NT to read. If you are newly diagnosed – not on meds yet – I hope you will consider this. The Michael J Fox Foundation is looking for volunteers to join its biomarkers study. If biomarker(s) can be identified, maybe researchers can come up with viable treatments for PD.

It may be helpful for you talk to someone who has participated in clinical trials. I joined my first clinical trial when I was a “de novo” parkinsons patient, so I know what it is like to take that step. I’ve been in several more since, and one of the studies I am in is SPECT brain scan which is very similar to the brain imaging technique the MJFox trial will use. You are welcome to PM me at any time.

The link below goes to a video about this study.

video about the MJFOX biomarkers study

If you are a de novo PWP, or if you know someone who is, the entire community needs your help. I hope you will consider helping us all.


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