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-   -   CCSVI Video (https://www.neurotalk.org/multiple-sclerosis/126050-ccsvi-video.html)

SallyC 06-27-2010 12:32 PM

CCSVI Video
 
This woman's 2 week Liberation Video, after CCSVI treatment. I hope it lasts.:)

I want to see how she is doing 2 or 3 months from now.

http://www.youtube.com/watch?v=GwGsrePGYis

Pink 06-28-2010 07:02 AM

I hope it lasts too, but I think by now we all know many have to go back for 2 or 3 times.
I found a Dr who will do it and has spots open, but he is on the other side of the US and to be honest I'm scared now. I've read where a few got worse a couple of months after and others it did not help.
I'm open to almost anything, but the possibility of getting worse scares the heck out of me. So, I'm waiting to see how this works out.

Aarcyn 06-28-2010 11:05 AM

I am keeping an eye on CCSVI too. I see all the positive posts, I just have not seen many of the negative posts. Too unbalanced so far...or at least, the skeptic in me has that view.

It is a question of competency in the doctor, who is capable and who is flying by the seat of his/her pants. To use stents that are not made specifically for the procedure and are they safe enough.

I read an analogy that going to a neurologist about the Liberation procedure rather than a vein doctor (I do not know the name of the actual specialist:o) is like asking a electrician to do a plumber's job. I do not think the MS specialist is qualified in this new treatment.

Got to admit, I wish it all could be handed to me on a silver platter.:(

And more importantly, that it is truly a real alternative.

SallyC 06-28-2010 10:21 PM

CCSIV Clinical Trial at Univ of Buffalo
 
http://www.ctv.ca/CTVNews/Health/201...-study-100628/


Researchers at the University at Buffalo are about to launch North America's first clinical trial to test the "liberation treatment," an experimental therapy designed to halt the symptoms of multiple sclerosis.

Dejibo 06-29-2010 07:09 AM

I want so badly for this to be true, accurate, long lasting and an elimination to this stupid disease. I am chicken tho. I am not willing to be first in line. I dont want artery stents used in my veins, and I dont want my brain stem ripped open for someone to get practice in this proceedure. After having several central lines in my neck during chemo for breast cancer, I have no doubt they will find blocks in my neck. I am just picking my moment to step forward and investigate it. :cool:

Pink 06-29-2010 09:04 AM

http://www.nytimes.com/2010/06/29/he...egmhLUk0g/CIAQ

From M.S. Patients, Outcry for Unproved Treatment


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