Dystonia and GI issues?
 

Hi,
I am looking for any information or experience anyone may have with dystonia and a GI condition, Gastroparesis. My daughter has a paroxysmal form of dystonia controlled fairly well on meds. She developed gastroparesis, a GI condition that is neuromuscular in origin, and I am now wondering whether there is a link. If anyone has had both conditions, please contact me re: what helped you... medications, treatments, etc.
Thanks so much for your time and attention!

Sorry you havent received any replies... sooo I "Googled" (paroxysmal dystonia + gastroparesis) it came up with several actually the 1st two were your two post of this question here. you might want to check it out the 4th one listed has several personal blogs about people living with the condition and you might check out the side effects of the drugs your daughter is on.
Good luck and God Bless

I can relate
 

i, My name is Judy **,a 58 year old female that has generalized dystonia and gastroparisis. Both illnesses are a challenge.I do hear that some parkinsons patients have this GI condition. I had deep brain stimulation sugery at the Mayo clinic last year but was told the surgery did not cause the condition. Ijust got diagnosed with GP. I had had stomach problems for years with no diagnosis. I will continue to see if there is a tie in with both conditions or if there is a medication cause. I take Levodopa. I am going back to Mayo for a followup appointment in April and they also have clinical trials for gastroparisis. Any new info I will pass along. Hang in! Judy the jabberwok

Hi, my name is Grace. I am new to having dystonia, but I have GI problems, too. I am borderline diabetic and have a difficult time eating when I do not feel like eating. But if I don't eat, my blood sugar goes up. Any help would be appreciated.