Rsd/crps
 

Hello Every One!
I am new here. But RSD has been with me for 7 years and 51yrs old and I can't remember all the Doctors I have seen. I hear epideral and I want to scream! I had 7 of them in 9 mths. Also a nerve oblation on my left leg. Which then turned the pain up to a constant 7,8. All the Docs I saw said "it's all in your head. Seriously I thought I was going crazy & scared out of my wits! I have 4 children, My daughter the oldest has 2 beautiful little girls 2&5. I have been married for 28yrs. To the same woman, as luck would have it she is an RN. I was having a real bad seizure type episode and we went to St.Lukes hospital in Denver, an hour drive. Finally found a Doctor who had a clue. He did some simple tests and said "this man has CRPS/RSD. Finally some relief from pain. St.Lukes closed the Pain clinic. So the Doc split back to his home town. I am glad to find this site to talk to people who know what I am going through. I just went through a 4 mth, pain flair. I have to educate my new Doc to this disease: I ended up making a quick cheat sheet to give to Doctors. Ketamine worked good with the old Doctor. But the new Doc won't prescribe it. Thanks EveryOne argy

Hey, Argy: We are all here with you and understand the frustration that comes with this pain. I have had four nerve block injections, a MUA of my rt shoulder with a cortizone shot, and can now say that I have "experimented with drugs." Pain meds, that is. Ha! I can't take them without allergic reactions and, you are right, the doctors are learning along with us. I have tooth pain and am educating my endodontist and dentist on this condition. One day at a time and good support. Take care and let your family help you; noone elses opinion matters. Blessings, Suz =0)

Hi Agry

I do understand. I'm so sorry you've been through so much. I had 7 1/2 years of hell myself. It is so hard to get on the right path to better care when you are painwrecked and out of your wits with frustration.

You will find lots of understanding people here who have the same diagnoses as you. Here is a link to the rsd/crps. I don't have that, but I do understand it to be very painful and debilitating.

http://neurotalk.psychcentral.com/forum21.html

Knowledge is empowering. The more you learn, the better you can help yourself. I know you will find lots of helpful info here.

See ya around...

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Hi, and welcome to NT! This is such a great place with many friendly, caring, and helpful people.

We're so glad you found us! :)

Great to have you with us!!