kinked brain stem
 

anyone out there whose been left with a kinked brain stem after a chiari surgery??......

my wife had surgery in February of 2010 and has had a lot of pain since and on a recent MRI about a week ago it showed a kink in her brain stem after her surgery as well. Doctor did not make big deal of it and we are trying to figure out why and if he should have as she is still having a lot of issues since surgery.

Did you ever get an answer as to if this is a concern for you?

Thanks for the reply..i'm afraid you are the only one to reply to my post...I hope your wife is some what better than she was...my son is still in hdu awaiting rehab...which he has been waiting for for a year now...the kink in his brainstem is still and i gather always will affect his breathing..swallowing gagging and coughing reflexes...it has affected many things his co-ordination of his arms and legs..he has sleep aponeoa....he peg fed and has a trachoe..he still gets the headaches..hes also been measured up for an electric wheelchair to help it get about...when he is ready ....he is still bed ridden and needs 24/7 care....
thank you again for replying..take care amanda.