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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   C.C.S.V.I. It's a great day in Canada! (https://www.neurotalk.org/multiple-sclerosis/129047-day-canada.html)

jeep4wd 07-28-2010 10:05 AM
C.C.S.V.I. It's a great day in Canada!
 
News just out, a province in Canada is going to back clinical studies for the liberation treatment!Saskatchewan's premier announced today!Saskatchewan has the highest cases of M.S. in Canada.Increasing pressure from M.S. sufferers have moved the premier "No one in this province who doesn't know someone who is fighting this"The province will pay for studies into this!|My thought's finally some movement in this direction thanks to all in Saskatchewan...Maybe this will move the neurologist's to think in a different direction.Because going down this road has produced very little result's if any...

mrkmyword 07-28-2010 11:58 AM
woohoo
 
:yahoo:
keeping all fingers,toes and any other loose parts crossed

sw8689 07-29-2010 01:51 PM
I love Sask's Government! They are becoming more and more a positive force for that province.

The ubc ms clinic in BC is supposed to be doing studies as well, but I haven't heard anything so far? Any one else?

FaithS 07-30-2010 10:18 PM
I've thought about pursuing CCVSI. However, when I've weighed the benefit/risk factors, I've decided that it's not worth it at this point.

My MS Specialist says that, except for study trials, it's starting to be pretty much shut down in the US, as two people have had serious complications. One procedure triggered death, resulting from a brain aneurysm, and another, who had a heart attack, survived.

I still support the concept of research, and the right of people to choose to participate in it. However, my choice, at this point, is not to.

~ Faith

jeep4wd 08-04-2010 12:23 PM
More news
 
More New's the premier of Ontario Dalton Mcginty announced that Ontario has to wait for more proof that the liberation treatment works..Before the province commits goverment money.If a heart patient has any blockages they are fixed but not M.S. patients.Lucky for me and my family we live in Ontario.

dmplaura 08-04-2010 07:32 PM
Quote:
Originally Posted by jeep4wd (Post 681906)
More New's the premier of Ontario Dalton Mcginty announced that Ontario has to wait for more proof that the liberation treatment works..Before the province commits goverment money.If a heart patient has any blockages they are fixed but not M.S. patients.Lucky for me and my family we live in Ontario.
The same outcome for my friend living in Belleville, who saw a Neurologist in Kingston, Ontario and was a couple steps away from scans and such. She showed up the day of (going back a few months here) and the neuro had pulled out of this.

WHY? I can only imagine pressure from the higher powers, and the almighty buck. :rolleyes: It's crap! Give us the options we need! Let US decide what's best for US!

~vent~ :cool:

FaithS 08-06-2010 09:14 PM
Quote:
Originally Posted by FaithS (Post 680605)
I've thought about pursuing CCVSI. However, when I've weighed the benefit/risk factors, I've decided that it's not worth it at this point.

My MS Specialist says that, except for study trials, it's starting to be pretty much shut down in the US, as two people have had serious complications. One procedure triggered death, resulting from a brain aneurysm, and another, who had a heart attack, survived.

I still support the concept of research, and the right of people to choose to participate in it. However, my choice, at this point, is not to.

~ Faith

Here are some links to studies that cast doubt on Zamboni's theories:

http://online.wsj.com/article/SB1000...155710380.html

http://online.wsj.com/article/SB1000...55710380.html"

~ Faith

sw8689 08-07-2010 11:13 AM
Quote:
Originally Posted by FaithS (Post 682717)

Here are some links to studies that cast doubt on Zamboni's theories:

http://online.wsj.com/article/SB1000...155710380.html

http://online.wsj.com/article/SB1000...55710380.html"

~ Faith
Thank you for these articles. The wall street one is expired I think, never the less the first one is interesting. I too, think it is important to watch these and further control groups.

I also understand our fellow MS'ers like my brother who are cycling with attack after attack needing to action if there is any hope.

I just wish they would allow the angioplasty here in North America so we know are folks don't have to go out of the country. And I would also like to know if there is any progress on a venous stent. Angiotech in Vancouver here, invented the first artery stent, I wonder if they are doing anything. If I can I will look into it next week for us.

EddieF 08-07-2010 03:39 PM
Angiotech needs a ring from you sw8689 Monday. And please get reason why (if any) how Vein/Artery vari stent wise other then more oxygen & pressure.

sw8689 08-07-2010 03:56 PM
Going to try...


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