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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   newly diagnosed and have little information about upcoming treatments/ (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/129927-newly-diagnosed-little-information-upcoming-treatments.html)

butterflykisses 08-09-2010 11:09 PM

newly diagnosed and have little information about upcoming treatments/
 
Hi, I am searching for suopport group to chat with and gain information and yes of course support too lol. It is a bit scarey starting such a journey into the unknown. I have to leave my hometown for seceral weeks of intensive treatment. i know little about it. my dr did give me a small pamphlet that tells me barely anything about it. my treatment is to begin with assessments and gangelion nerve blocks as well as intensive therapies, and this will occur for at least 6 weeks. i have been reading online and keep seeing where there is no cure for this disorder, just remissions. I am hoping to regain full use of my hand..is this possible??? utterly tthank you all for reading this and any replies you might give me will be cherished / appreciated sincerely, Butterflykisses

Emily_Rose 08-10-2010 03:23 AM

How long have you had the pain in your hand? If it's been under or around 6 months and you are going in for intensive treatments soon then it's likely the RSD may go away. I have had this condition untreated for 5 years but since my last major flare up has been going on for about 7 months my current doctor is optimistic that with intensive treatments it can go back into remission. It sounds like your doctor is doing something similar. A good strong or continuous dose at once. You are fortunate to have a doctor who is willing to help you, early on in this condition. It makes a world of difference since most of the battle is usually getting a diagnosis. I wish you all the best in gaining the use of your hand again. :)

butterflykisses 08-10-2010 09:29 AM

Thanks emily,
 
I DEEPLY APPRECIATE YOUR COMMENTS. yes it is under 6 months since my pain started. It resulted from a traumatic injury at work and surgery to my hand. The doctor was surprised when i developed this "complication" as he called it . my hand is striff and a bit clawlike. hard to describe the kind of pain that in it. some swelling depending on activities too. skin is shiny and can change color. My doctor is verry good at diagnosing and getting my treatment set up very quickly. Thank you for your encouragement !

renhenne 08-13-2010 07:31 PM

You are soooo lucky to have a physician who noticed your RSD so early! I have been battling RSD for 6 years now and have dealt with Dr's and friends with attitudes from, drug seeker, attention seeker to psychotic.

Early detection and treatment is key. Call your Dr's office and see if they have a wait list they can put you on for cancellations and ask if you can make phone calls for them to assist in your workers comp. Sometimes, their are things we, as patience, can do.

Be strong, have faith and breathe!!! :hug:

fmichael 08-14-2010 01:43 AM

Quote:

Originally Posted by butterflykisses (Post 683611)
I DEEPLY APPRECIATE YOUR COMMENTS. yes it is under 6 months since my pain started. It resulted from a traumatic injury at work and surgery to my hand. The doctor was surprised when i developed this "complication" as he called it . my hand is striff and a bit clawlike. hard to describe the kind of pain that in it. some swelling depending on activities too. skin is shiny and can change color. My doctor is verry good at diagnosing and getting my treatment set up very quickly. Thank you for your encouragement !

What treatments have you or will you be recieving in the very near term? Please be as specific as possible. This is important.

Mike


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