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ginnie 08-10-2010 01:23 PM

uncertain
 
:confused::confused: Hello, I am new, and not very good on the pc I am looking for dicussion on cervical disk disease. I would like to know if anyone has my trouble. I am 6 years post fusion c-6-7 and have narrowing of my spinal cord. and severe degereration c-4-7. I have had incidence of fecal incontanince. Everything I am reading says that this can happen. :confused::confused:my gastro dr. says this is seperate and wants to do very invasive embarassing tests. Should I not go back to a neurologist first to find out? Who has had experience with this? I do have severe cervical issues

glenntaj 08-11-2010 06:07 AM

Welcome to Neurotalk--
 
--though I'm sorry for the issues that bring you here; spinal problems are never nice, and rarely simple.

It is trure that problems in the cervical spine can cause symptoms at any level at or below the level that the problem stems from, so yes, cervical issues can be felt as far down as you indicate (and even farther down into the legs and feet, depending on what nerve tracts are involved). Some doctors, unfortunately, only think upper body when cervical issues manifest.

Extensive testing may well be necessary; many neural dysfunctions that have the exact same symptoms or presentation can stem from problems in many different parts of the body; the testing is often long (and expensive) in an attempt to do process of elimination.

Feel free to post on our Spinal Disorders forum, where there are numerous knowledgable people:

http://neurotalk.psychcentral.com/forum22.html

Goassen 08-11-2010 01:15 PM

Heiasan:) Jeg er ny her i denne neurotalk verden og har gått meg litt vill.. tror jeg. Jeg er på leting etter å treffe noen som har kjennskap til diagnosen spinal myoklonus. Er det noen av dere som leser dette som kan navigere meg...Takk Tror etterhvert og litt tid at jeg skal forstå hvordan dette virker..



translation from Google -Translate text, webpages and documents -

[Heiasan I'm new here in this neurotalk world and have me a little wild .. I think. I am seeking to meet someone who has knowledge of the diagnosis of spinal myoclonus. Are there any of you reading this that can move me ... Thanks I think eventually, and some time for me to understand how this works ..]

http://translate.google.com/#auto|en...dette%20virker..

Darlene 08-12-2010 12:49 AM

Great to have you with us!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. Looks like Alfee has given you a place to start.

There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:

ginnie 08-12-2010 09:58 AM

hello glenntaj
 
Thank you for your reply. I did find out yesterday my CT scan is very bad, and yes, lower body functions can be affected. I have posted today about it and will be listening for replies today. I am in terrible trouble with my neck and need to chat or post with people today. I have never in my life been on the PC like this, so it is all new and I don't know all the ways this site posts yet. It still is confusing to navagate around, I would like to chat as today is not good at all. I can't make myself call the neuro surgeon. I am in shock.

ginnie 08-14-2010 08:52 AM

Hello goassen
 
Hello goassen, I am learning on this site too, glad to meet you. Fantastic that we get the translations. I look forward to saying hi to you again via this site:)

MelodyL 08-14-2010 12:53 PM

Quote:

Originally Posted by Goassen (Post 684033)
Heiasan:) Jeg er ny her i denne neurotalk verden og har gått meg litt vill.. tror jeg. Jeg er på leting etter å treffe noen som har kjennskap til diagnosen spinal myoklonus. Er det noen av dere som leser dette som kan navigere meg...Takk Tror etterhvert og litt tid at jeg skal forstå hvordan dette virker..



translation from Google -Translate text, webpages and documents -

[Heiasan I'm new here in this neurotalk world and have me a little wild .. I think. I am seeking to meet someone who has knowledge of the diagnosis of spinal myoclonus. Are there any of you reading this that can move me ... Thanks I think eventually, and some time for me to understand how this works ..]

http://translate.google.com/#auto|en...dette%20virker..



Hello Heiasan:

Hallo . Velkommen. Her er en link til vår rygg forum . (I'm hoping this says "here's a link to the spine forum".


http://neurotalk.psychcentral.com/fo...sprune=75&f=22

Stay well

Melody

MelodyL 08-14-2010 12:59 PM

Quote:

Originally Posted by virginia neill (Post 684283)
Thank you for your reply. I did find out yesterday my CT scan is very bad, and yes, lower body functions can be affected. I have posted today about it and will be listening for replies today. I am in terrible trouble with my neck and need to chat or post with people today. I have never in my life been on the PC like this, so it is all new and I don't know all the ways this site posts yet. It still is confusing to navagate around, I would like to chat as today is not good at all. I can't make myself call the neuro surgeon. I am in shock.

Hi Virginia:

Take a deep breath, you are not alone. You are learning the computer. This is a good thing. You will make new friends here and you will learn how to navigate this site. Don't be afraid. Computers are machines. You control them.

So keep reading and others will come by and give you support.

I am so sorry you are going through this.

Others are in the same boat.

I just wanted to stop by, say hi and welcome you to Neurotalks.

Take care

Melody

ginnie 08-14-2010 01:13 PM

Re: thanks
 
[Hi melody, for replying to me. I am ginnie, going on 59 soon. I am trying to take that breath. In one week, that quick, I again face a neuro. I had a terrible first time around with a doctor who would not tell me the truth about anything that was wrong with me. I had to get my records to find out. I never went back, and have obviously been busy degenertaing since. He did not tell me about DDD or DJD. He also expected me to do NCT imediately after surgery without telling me why he was asking for that test. I am not a cow, I don't need more shocks telling me I have shocks. he would not help me unless I agreed to to it. I walked out and did not return. I have been in pain thearpy since. now i present with this host of troubles. I see new neuro on tuesday, and sugestions to how I get a good responce to my questions to this new NS?

MelodyL 08-14-2010 01:33 PM

Quote:

Originally Posted by virginia neill (Post 685097)
[Hi melody, for replying to me. I am ginnie, going on 59 soon. I am trying to take that breath. In one week, that quick, I again face a neuro. I had a terrible first time around with a doctor who would not tell me the truth about anything that was wrong with me. I had to get my records to find out. I never went back, and have obviously been busy degenertaing since. He did not tell me about DDD or DJD. He also expected me to do NCT imediately after surgery without telling me why he was asking for that test. I am not a cow, I don't need more shocks telling me I have shocks. he would not help me unless I agreed to to it. I walked out and did not return. I have been in pain thearpy since. now i present with this host of troubles. I see new neuro on tuesday, and sugestions to how I get a good responce to my questions to this new NS?

Hey Ginnie:

I'm 62 and I've had Degenerative Joint disease for YEARS. I am so sorry your doctor has not been supportive.

I also know what nerve conduction tests are.

The last time my former doctor ordered one for me, I went to this neurologist's office and the nurse started to do the test and let's just say that nerve conduction tests are not the most pleasant thing in the world but actually the person who gives the test can make ALL the difference.

The lady who was doing my arm, well let's just say she had to be the stupidest person (is stupidest even a word??)

She did it twice, I said "ouch" She just sighed and said "well, this can be a tad uncomfortable". I had had these test previously so I knew what they were all about.

I looked at her and she did the third shock. That was when I jumped off the table and threatened her life.

This DID NOT HAPPEN TO MY HUSBAND. He just sits there and laughs because he has Peripheral Neuropathy and his feet are numb and they can shock him to kingdom come and then they all go "you didn't feel THAT??"

I'm like you. I don't like tests either. I go because I have to go. But only when I HAVE to go.

Let's hope you have a good experience on your upcoming doctor visit.

Keep us updated.

Nice to meet you.

Melody


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