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-   -   Lou Gehrig didn't have Lou Gehrig's disease (https://www.neurotalk.org/parkinson-s-disease/130605-lou-gehrig-didnt-lou-gehrigs-disease.html)

paula_w 08-18-2010 04:40 PM

Lou Gehrig didn't have Lou Gehrig's disease
 
head trauma used to be discounted as causing pd. i'm not sure but i don't think it's been previously considered as a cause of most motor neuron illnesses has it? i admit i haven't read all of this yet. I don't understand why they didn't think head injury caused pd but it was finally modified to something different with Ali looming tall and obviously brain damaged.

It sheds a whole new light on what can go wrong. i suppose there is much money to be made and noticed the tv commentator made sure he said, "don't stop loving football."Someone might shoot him for messing with that kind of money.

cynicallly yours, but not holding my breath for anything being done about it but money making by those who don't have it for years to come. is it fatal? if not then hope would be created for those who have ALS dx but actually do not have it.

http://www.time.com/time/health/arti...stpopularemail

indigogo 08-18-2010 04:56 PM

Now what ....
 
Paula - when I read this news item yesterday, it just made me feel tired. It's more information/confirmation that we don't know or understand what is going on in the brain. We have based treatment on assumptions that are turning out to be wrong.

RLSmi 08-18-2010 11:40 PM

I have often wondered
 
About Steven Hawking. He has supposedly had ALS since his days as a grad student in the early 1970's. That would mean that he has lived (with great disability but very successfully, professionally) with whatever his disorder is for no less than 35-40 years. To my knowledge, there are either none or very few others who have been known to survive with ALS for that length of time.

Clearly, there are numerous distinct motor neuron diseases with distinct etiologies and clinical outcomes. Reminds one of PD doesn't it?

Robert

GregD 08-19-2010 06:19 AM

With all the latest treatments and research being done in the world, they still have no idea what the cause of PD or other distinct motor neuron diseases or what bodily systems are affected. While I feel that these new treatments and research should continue, I also feel there should be more research being done to find out what exactly causes the diseases.
Someone needs to go back to the very beginning. Back to basic biology and find out exactly how, in our case, PD starts. What causes PD to develop.
I know in this day and age where we see miracles in science everyday this is not a popular idea but as shown in Paula's article, and indigogo said, "We have based treatment on assumptions that are turning out to be wrong." It is time to get serious about finding treatments that work or god forbid,,, even a cure.

GregD

chasmo 08-19-2010 09:19 AM

what ever you want to call it, this is no cure for it....right???
SO w hat do you doo? develope a protocol for those who have hhd their "bells rung"?
pehaps a course of steroid treatment? it seems to me t hat doing something would be better than doing nothing at all??


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