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-   -   Thanks everyone - now I don't feel like a nut! (https://www.neurotalk.org/scs-and-pain-pumps/131158-thanks-dont-feel-nut.html)

meg1262 08-26-2010 12:09 PM

Thanks everyone - now I don't feel like a nut!
 
I'm so glad I connected with this board. It's true that it feels like we're speaking a different language, tweek, twang, bionic butt (that's my fav)!

I hope to get to the point of contributing very soon, however I have a few new problems that perhaps someone has some insight to share. First, whenever the stim is on, no matter if the settings are high, medium or low, I am a total klutz. I keep walking into things, bouncing off walls. If I start walking a straight line, I end up going diagonally which usually ends with my face in the wall. The upside is that I'm entertaining my kids. Anyone else have this happen?

Secondly, as if the above isn't enough, in my extreme clumsiness I fell up the stairs and then fell back down a few. I have a few nice bruises and scrapes, but the real problem is that I landed right on the implant. I think it moved out of place a bit. I'm assuming that's not a problem with the system in general but it feels like something is pulling when I move, especially stretch.

Third, my doctor is out of town this week and they said unless it's an emergency, I can wait until he gets back.

Any thoughts?

Thanks!

Mary

Mark56 08-26-2010 07:08 PM

Welcome Mary
 
Quote:

Originally Posted by meg1262 (Post 688778)
I'm so glad I connected with this board. It's true that it feels like we're speaking a different language, tweek, twang, bionic butt (that's my fav)!

I hope to get to the point of contributing very soon, however I have a few new problems that perhaps someone has some insight to share. First, whenever the stim is on, no matter if the settings are high, medium or low, I am a total klutz. I keep walking into things, bouncing off walls. If I start walking a straight line, I end up going diagonally which usually ends with my face in the wall. The upside is that I'm entertaining my kids. Anyone else have this happen?

Secondly, as if the above isn't enough, in my extreme clumsiness I fell up the stairs and then fell back down a few. I have a few nice bruises and scrapes, but the real problem is that I landed right on the implant. I think it moved out of place a bit. I'm assuming that's not a problem with the system in general but it feels like something is pulling when I move, especially stretch.

Third, my doctor is out of town this week and they said unless it's an emergency, I can wait until he gets back.

Any thoughts?

Thanks!

Mary

Welcome to our discussion area, and for your bravery in sharing what to some could seem untoward unseemly topics. The topics are just fine, and the issues are, for you, very very real, but I have not, as a stim implantee have not encountered such phenomena personally, well, in a literal sense not.

Here is my take. I have noticed as a part of recovery and rehab from the surgery, I tend toward instability on my left body side, my weakest. For this reason, I may, if uncareful upon arising tend to wobble [I am not a weeble] and come close to falling. In therapy the speculation is that this represents core body strength need for development, not necessarily a stim malfunction or defect of my body per se. I await further development of this issue to see that something does truly come of it one way or 'tother so I don't just go on unsteady.

I will bring this to my docs' attention when next I see them, as I am sure you will do in your case as well. Falling down or instability is an issue either muscular or neurological in my understanding of my case since no inner ear problem is noted. I'll share when something is learned.

Be careful for yourself in the meantime.
Mark56 :)

Rrae 08-27-2010 12:15 AM

BABY STEPS!!
Oh Lord, please don't take a fall. We don't want that!
And heck, use a cane or 'walking stick' to help you get around for now!

......that way you'll have something to use to 'reach out and touch' those who say stupid things....like......'ohhhh, it's all in your head'.......:rolleyes:

:hug:

Glad you are here! Please stick around as we all share our enlightenments! :)
We continually grow from one another
:grouphug::grouphug:

Mark56 08-30-2010 10:23 AM

Happy Monday
 
Hi Mary- and here is hoping you have a happy Monday, no wall bouncing, stairs taken carefully..... you know. Like Rae said BABY STEPS. All post surgicals are baby steps until we get to where we can walk again. Use hand holds, borrow a walker, I use a cane, whatever it takes to keep you safe during these early days.

Caring,
Mark56:)


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