IgG Therapy
 

Hi,

Have not found any posts that address IgG therapy for neuropathy unless just didn't notice them.

Has anybody had this treatment for neuropathy of any kind, including small fiber sensory? Just read that it is approved for treating polyneuropathy and wondering why it wasn't suggested for me way back when the diagnosis was made.

Sheltiemom

If you search IVIG in the search function, many posts will come up. I assume that is what you mean?

There have been several here over the past 4 yrs using this.
The criteria for using IVIG for neuropathies and other autoimmune diseases increases yearly. So many conditions now are eligible.

We haven't done the IVIG thread yet for the subforum...I apologize, but my vacation came up just after we started that format.:o We'll get to it soon, I hope.

IgG Therapy
 

I'll do a better search at this subtopic - but thanks. I was wondering why the neurologists hadn't even suggested this as a possibility back in January.

Sheltiemom

I receive IVIG. I believe it has helped stabilize me.

I think I recall SheltieMom that you are elderly--75? Or am I wrong?

If I am recalling this accurately, some doctors hesitate to use IVIG in the elderly because with increased age, there is increased risk of stroke. Even if you are not in the elderly class, any cardiovascular risk factors or high platelet counts would also be a barrier to receiving IVIG.

So the doctors may hold it back unless you are severely impaired or paralyzed (like with GBS).

http://www.cidpusa.org/ivig.html

http://journals.lww.com/neurotodayon..._Raise.11.aspx

I figure at some point, if for no other reason, they will cut my IVIG....I am still considered 'young' at 57, so, I figure I could do a few more years, maybe a decade, if they go that long.

I do know that I am attempting and succeeding things I could not do two years ago, on much heavier pain meds. But success is slow and one must be ultra motivated to move, move, move.

I would like to put in a warning about IVIG, I am 64,and I loved the treatment...3 days after my last treatment I was rushed to ER then
up to ICU,I'm told don't remember...My kidneys shut down for a short time.
I had to be put on Dialysis .Now we are talking about me I cried becaus hey
took me off it ,I was 3 weeks feeling so much better on it.BUT my kideys
are very important..Get your's checked make sure you talk to your Dr.s.,but just a warning many people are on it and doing very well on it.

I truly believe PN. and CIDP and so many neru problems lack the funds for for better rescarch but we know that.arewe wouldn't be here..I'm so glad
we have NeuroTalk.

Mrs. D you deserved your vacation,but sooooo glad to see you back,:):):)
Hugs to all,Sue

There are certain precautions in testing for IVIG ...
 

that is why gallons of blood are drawn to see what, if any reactions one mite have to the infusions of IVIG. IT's a 60% chance it can help? IF DONE RIGHT. If not? options are currently Prednisones and/or plasmapherosis[?] Of them all, the IG infusions is the most simple and while invasive? It's the best option for autoimmune issues. BUT ONLY if meeting certain criteria.
No one really knows how it works? But it does:
http://www.news-medical.net/news/2006/08/03/19244.aspx

Here is one plan summary of use, reactions and validity...
http://www.ashp.org/s_ashp/docs/file...Admin-Utah.pdf
This is the best I can do today? I'm tired and tho I know I've more good sources? Just can't find them today! Tho...I'd found them last week! DRAT!
Keep asking questions? And we will help! Keep faith and hope in yourself and don't give up! Something must work! It's got to! :hug::hug:'s!!!! - j

They check my kidneys every month. I get a bmp and glomerular filtration rate done.

IVIG is basically all protein and the kidneys have to be able to handle this and as we age, our kidney function declines, so that is one reason they don't like to give it to older people....altho 64 isn't old for IVIG.

I do have some trending on my labs that I watch, but it hasn't errupted....last month, I went over and under a bunch of normals, but the GFR was fine, so they haven't stopped it.

IVIG is serious medicine, no doubt. I worry about it all the time but it allows me to be up and doing things I didn't think I could do again....but that has taken pretty much 2 years....and it is still subtle.