just diagnosed with glossopharyngeal neuralgia..help..
 

I live in PGH. PA....just diagnosed after years of mild attacks... this last year has been non-stop attacks.. interested in doctor advice.... medicine..surgery..work related issues...similar stories... and friendship..
thanks
kathleen:confused:

Hi Kathleen and Welcome
 

Glad you've found NT....you'll find many caring folks here.
I'm sorry to hear of this battle you've been faced with.

Please feel at home here and browse thru the forums, jump in wherever you feel inclined. There is so much information here and people will embrace your concerns with very caring and open hearts.

We continually learn from one another.
Just ask if you have any questions or need help finding your way around.

Caring
Rae
:hug:

Hi, just wanted to add my welcome. You came to a good place...lots of friendly people here, and you'll surely find some help and support!

I have to say, when I saw your diagnosis, you had my immediate compassion. I can't imagine how much pain you have to deal with!

Great to have you here!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great and caring fellow members here to assist you. Our shouders are here for support in many ways. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:

gaining knowledge
 

where do ya go to talk facts and stories
:rolleyes::rolleyes::Speechless:

Hi there and welcome. I have TMJ so I completely understand SHARP SHOOTING PAINS, but your's is different.

I googled it and came up with this website.

http://www.nlm.nih.gov/medlineplus/e...cle/001636.htm

Ah, the old 9th cranial nerve!!!

Very hard to deal with, but you have not come here for sympathy, you came for support, and support you shall have.

I am trying to find the correct forum for you. Others will probably beat me to it.

But until then, just know that you have hit on a really cool place and we are really cool folks.

Take care, and hopefully we'll direct you to a forum that will give you more answers.

Take care,

Melody

Hi, me again.

Here you go!!


http://neurotalk.psychcentral.com/forum105.html

Melody

hi
 

im in pittsburgh area too. what doctor do you see now? they do the surgery for neuralgia at allegheny general but every doctor has told me not to do it. too many risks and no guarantees. reply if you want to talk! :hug:

So sorry. It took 4 months and 4 doctors before I was diagnosed. I am currently taking Tegretol. A 200 mg. pill 3 times a day (every 8 hours).
I am having an episode now. It has lasted 3 days so far. The medication helps but makes my head feel heavy and I feel incapable of doing some of my daily activities such as driving. I am not employed so I don't have to be concerned about missing work. It is a strange affliction. Do you have a particular question?
Petunia