lizajane.org
 

The site is up and working, and the webmaster informs me that in August, a week when he was away and it was down for almost a week, it had 126 new, separate visitors!

Even with no ads, no racy name, nothing flashy, the site seems to be attracting fellow neuropathers, who are finding it useful enough to download pages! It's aging well.

If people have suggestions, I can always update it with new ideas.

Hey, I know--
 

--I continue to recommend it--and not just for people experiencing neurological symptoms--it is, in many ways, a concise overview of the current state of medical testing.

As do I.
I just hope that everyone I send to it,
actually goes there. It is invaluable to PN'ers

While I think this is a wonderful resource, I don't use any of them because I cannot read all my results and make any sense of them. I have tried very hard, but just can't... so I don't understand what needs to go in each chart. I do have a huge binder of my medical records, and that has been good enough for what my doctors need.

I have absolutely no trouble understanding results form tests and procedures for all my other medical problems, such as back problems and PCOS. It's just all of this neuropathy things that I get so confused about. I don't know why.. but none of it makes sense to me and I struggle with it.

It's good for those people who can make sense of it and find what they need to fill out the charts, though. :)

for Sarah Ma
 

For you the charts might just help in keeping track of the tests you've had. I understand you've had POTS since childhood, or maybe since gastric bypass--it's not clear, as well as PCOS and polyneuropathy. The spreadsheets are a way, for you, of handwriting in organized way the tests your doctors do so you can see changes over time. They download as spreadsheets that one can write on and change to fit your own circumstance. So for you, for instance, you might just want to follow, over time, you BP, or time out of bed, or vitamin levels. Best of luck. Though I too, after skimming your journal, could not quite understand what pre-dated gastric bypass and what did not or figure out how knowledgeable your doctors are about POTS.

The POTS is just after surgery as far as I know.. but who knows. It was diagnosed at Mayo in May... and the PCOS was diganosed many years ago... but the majority of the tests I have only had once, not many times... so I don't have a progression to chart... so the results from the tests seem to do just fine and I don't need to chart them again--it would just be repetitive. I have had two nerve conduction studies... and have had bloodwork done often. The bloodwork would be good to chart, but I can't understand what I am reading to transfer it to a chart... so I haven't done that. That seems to be the only chart that would be helpful in my case, since it's the only thing that is done regularly... but I just can't seem to figure it out. It is helpful for those who can, though! It's a wonderful tool.. I just can't seem to wrap my mind around things enough to take advantage of it. :)