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-   -   My journey with RSD (https://www.neurotalk.org/new-member-introductions/132583-journey-rsd.html)

Cindioh1 09-14-2010 03:35 PM

My journey with RSD
 
Hi everyone I'm a nurse whom had a work injury where my my pt had an open wound and when cultured had MRSA I went to give a breathing tx and she
whom had alzheimers become combative and scratched me in my arm causing cellitis along with MRSA. After several rounds of ATB Mrsa finally went dormionant. Well then I started having alot of burning and numbness in my hand and arm my fingers were numb unable to grasp anything or feel anything. finally after seeing many Drs. one neuralogist stated it was RSD. Still having alot of problems convincing Workman's comp it has been close to 18 months. About a month ago developed red browish colored rash had a biopsy done showed disseminated superficial actinic porokeratosis. I have read where some people whom have RSD have rashes. Not all cases are the same I wish some medical personnel would go with this. I did have PT and it helped a little but I'm so depressed and wonder when this will end.....:wink:













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mrsD 09-14-2010 03:43 PM

I understand your concern...

This "diagnosis" is genetic:
http://dermnetnz.org/scaly/dsap.html

I wonder though if you have tinea versicolor? It will turn brownish with sun exposure.
http://dermnetnz.org/fungal/pityriasis-versicolor.html

Tinea versicolor is treated with sulfurated soaps and/or antifungal liquids applied topically. It can take a year to resolve in some people.

Welcome to NeuroTalk. I can't comment on the RSD connection, but please keep an open mind about other causes.

Lisa in Ohio 09-14-2010 08:56 PM

Hi Cindi Ohio, So sorry about the work injury, especially in Ohio. Hang in there, I was not diagnosed with RSD until 4 years after my fall at work. I did get it added onto the claim as an addition diagnosis, so it is possible. The bad news is RSD doesn't go away, the best we can hope for is remission, and I personally believe that this is only possible with early intervention, like blocks. Right now you need to concentrate on finding a really good Pain management doctor and an attorney that handles WC claims. I have had a good experience with Larrimer & Larrimer here in Ohio. Plan on this being a struggle, to get the treatment that you need. Nice to meet you, Lisa in Ohio

painfull 09-21-2010 06:34 PM

I am sorry for your diagnosis. I have recently been diagnosed myself with RSD. The pain is burning, stabbing, sometimes dull and throbbing but always there. I can't use my foot and it looks so weird to me. It is all deformed and discolored. I am having a hard time as well. All I can say is that I am in Washington state and I have a great Dr. and employer. I have been able to still work because I am at a desk, my employer is extremely flexable with time off. Through my Primary I've found a therapist(which I recommend you get asap and 1 that has had RSD patients) who is wonderful I cry there all the time. I've also found a good spine Dr that gives me relieving spinal nerve blocks, although they only help for hours sometime 1 day, it is better than nothing. I have an accupunturist that helps me with the side effects of all the medications I'm on, and yes my primary has me on anti-depressents. It's hard for me to accept that this is forever. I'm sorry to be a bummer. I can relate with your worries and I am here to listen to you when ever you need someone.

Darlene 09-22-2010 12:28 AM

Great to have you here!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number of fellow members here to assist you. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:


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