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-   -   parkinsons (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/132747-parkinsons.html)

lilvout 09-16-2010 01:40 PM

parkinsons
 
Hi everyone
I have been diagnosed with young age early onset parkinsons, in 2008. As a mother and a wife I was wondering if anyone can give me a no nonsense portrait of what is going to happen to me. I know it is different for everyone the progression that is but I have been told the outcome is virtually the same for everyone.

Shakerlady 09-16-2010 08:50 PM

Hi, I just joined Neurotalk...I'm not familiar with how this website works yet. I have PD also, DX 'd at age 61 six years ago. I think it will depend on how well you take care of yourself. Exercise, according to those who do it, and I believe research is starting to back this up, is critical and even neuroprotective. Take some of the supplements mentioned on good PD websites. I would not worry about the outcome. Just try to live each day to the fullest, stay connected with your dear ones, get enough sleep, eat a diet rich in vegies and fruits, and go to a good neurologist, preferably a Movement Disorder Specialist. If your neurologist is a good one who prescribes the meds that are best for you and you do all of the above, you're likely to have slower progression (in my opinion). Handling stress better also protects the neurons in the brain. Prayer and the support of others have also been very important to me.

Parkie 09-16-2010 10:13 PM

Don't worry, be happy!!!!!
 
Nice to meet you Lilvout, I'm Barb and I'm new here too. I have been diagnosed 7 years and I am better than I was when I was diagnosed. I would say that 95% of this is attitude. I found that the earlier that you "own" your condition and get comfortable with it, the better off you will be. Do I wish I didn't have pd? Hell yes. But the fact is I do. That is my reality, and you HAVE to live with your reality, I refuse to be embarrased or ashamed of it. Please don't waste your time worrying about how it will end, what if you got run over by a bus, look at the life you wasted. I've always believed that what you laugh at can't hurt you, and I have some funny funny stories about days when pd was running the show. As far as the outcome being the same for everyone, isn't that true for every one that is living now? Aren't we all going to die?? I hope you can make peace with it and live well
then, and only then, when its your time to go, concentrate on finishing well.

Jomar 09-16-2010 10:28 PM

Hello & welcome,

I placed a copy of your thread on our Parkinson's forum - here is the link to it-
http://neurotalk.psychcentral.com/sh...d.php?t=132778


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