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-   -   So frustrated!!! (https://www.neurotalk.org/scs-and-pain-pumps/132892-frustrated.html)

tchr012 09-18-2010 11:49 AM

So frustrated!!!
 
I feel so angry, sad and frustrated right now! Yesterday, I finally called her office to see if there was any news (and its good that I did) because of course she had not even talked to the surgeons yet! And the front desk people said they knew nothing of this but that I would get a call back later. Of course I did not get a call back and its so frustrating. I feel stupid for getting my hopes up that things in her office would be different:Bang-Head::Bang-Head:! I guess its hard when you feel that you have no control over certain things...and maybe it adds to the frustration that there are many things I feel like I don't have control over right now :( I have been trying to do the serenity prayer and praying about it but I guess I am still upset tho. I am definitely going to call and bug them on Monday though because as a patient that is under her care I should have the right to know what is going to happen with my treatment! I dont even know which surgeon or where, let alone when it is going to happen. I want to know something because this surgery will affect all kinds of things in my life and also my family. There is nothing I can do this weekend except try to work on school work and do other things, the patches have not helped and I had to take them off because they burned really bad! So anyway, thats my non-update I hope all of you are having a good weekend! My goal is to be posting my surgery date update next week (and I am going to keep bugging them until I know something ;) Sorry for all this negativity lately, I just have to talk about it because then I will have more room for the positive things ;) Take care :hug:'sTara


Pain is so bad I am heading to the ER again :( I really hate it there but I feel like my back to my feet are on fire, with added sharp pains in there too...so I am going back. I am so tired of feeling like this:Sob:

tchr012 09-18-2010 08:50 PM

Back from the ER
 
Well, I guess it was really good that I went because I found out I am having kidney problems again and I have a kidney stone. I usually have to have them surgically removed (already happened three times) but they said it isnt at an area to be causing problems yet. They gave me some pain meds and nausea meds again so I am very grateful for that, and also antibiotics for the kidney stuff. I am feeling really crappy but just wanted to say how it went. Good night.

ams0310 09-18-2010 09:45 PM

I am so sorry that you are having to experience all of this. It is very frustrating. As lame as it is, and I am sure that everyone can tell you this from experience, things happen for a reason, again, lame I know.

I hope that you can find something to keep your mind busy while you wait for your Dr. to get their rears in gear.

I also hope that you get to feeling better from your kidney infection.

God Bless...Awna

fionab 09-19-2010 07:44 AM

Glad to hear you went to ER and they found kidney stone. Hear that is VERY painful so that may be good news in that it may be part of your pain problem???

I think we'll all give out a big hoot and holler with you when you can finally cut your ties to this doctor and get on board, totally, with new dr.

Hang in there, it'll happen, not as quick as we'd all hoped but soon. Hope the kidney stone thing gets resolved and you're at least pain free from that SOON :hug::hug:

Mark56 09-19-2010 08:09 AM

Persist and Persevere
 
Hang in there Tara! Those pains can be so hard to handle, and to have one tied to kidney stone, OUCH!!. May all be well and soon,
Mark56:)

anon21816 09-19-2010 12:31 PM

Omg!!!!
 
Quote:

Originally Posted by tchr012 (Post 696215)
I feel so angry, sad and frustrated right now! Yesterday, I finally called her office to see if there was any news (and its good that I did) because of course she had not even talked to the surgeons yet! And the front desk people said they knew nothing of this but that I would get a call back later. Of course I did not get a call back and its so frustrating. I feel stupid for getting my hopes up that things in her office would be different:Bang-Head::Bang-Head:! I guess its hard when you feel that you have no control over certain things...and maybe it adds to the frustration that there are many things I feel like I don't have control over right now :( I have been trying to do the serenity prayer and praying about it but I guess I am still upset tho. I am definitely going to call and bug them on Monday though because as a patient that is under her care I should have the right to know what is going to happen with my treatment! I dont even know which surgeon or where, let alone when it is going to happen. I want to know something because this surgery will affect all kinds of things in my life and also my family. There is nothing I can do this weekend except try to work on school work and do other things, the patches have not helped and I had to take them off because they burned really bad! So anyway, thats my non-update I hope all of you are having a good weekend! My goal is to be posting my surgery date update next week (and I am going to keep bugging them until I know something ;) Sorry for all this negativity lately, I just have to talk about it because then I will have more room for the positive things ;) Take care :hug:'sTara


Pain is so bad I am heading to the ER again :( I really hate it there but I feel like my back to my feet are on fire, with added sharp pains in there too...so I am going back. I am so tired of feeling like this:Sob:

Tara:hug:

I had to double check this thread to see if it was an 'older' one because I just couldnt believe what I was reading. I cant believe that you have taken two steps forward in getting to see your Dr's etc and now THREE steps back because NO ONE seems to know anything about it:mad: HOW is this practice still in operation. It just beggars belief.
Im so sorry to hear that you then had to go to ER and now have a kidney stone. I know thats very painful too. Its just so hard to believe that you have to endure all this stress, especially after they have already built up your hopes thinking you were going to be done , well basically ASAP.......what a let down......I will pray that you will get some relief from your painful kidney stones and hopefully get some news about your operations......

My thoughts are with you as always:hug:

tchr012 09-20-2010 11:25 AM

Feeling a little better(Kidney issues)
 
HI everyone, just wanted to let you know that I am feeling better with my kidney issues ;) They also told me that my stones are not in a place to be causing pain so they did not think it was part of my pain. I have had stones before and one time it was so large it blocked up my kidney and so now I have permanent damage to it and it keeps damaging itself....and I have been through at least 3 surgeries for them to be removed plus the stents which I really hate!!!! I will be back on here as soon as I can when I get information about my surgery, like I said I have already started bugging them again today and will continue to do so until I know something! Since, I was able to get some pain meds I am taking advantage of that and doing as much school work as possible...I know that sounds weird but with my stim messing up and it is again on sleeping mode I can hardly sit still long enough to do any homework! Thanks again everyone for your support and encouragement I really appreciate it! Take care :hug:'sTara

anon21816 09-20-2010 11:52 AM

Quote:

Originally Posted by tchr012 (Post 696847)
HI everyone, just wanted to let you know that I am feeling better with my kidney issues ;) They also told me that my stones are not in a place to be causing pain so they did not think it was part of my pain. I have had stones before and one time it was so large it blocked up my kidney and so now I have permanent damage to it and it keeps damaging itself....and I have been through at least 3 surgeries for them to be removed plus the stents which I really hate!!!! I will be back on here as soon as I can when I get information about my surgery, like I said I have already started bugging them again today and will continue to do so until I know something! Since, I was able to get some pain meds I am taking advantage of that and doing as much school work as possible...I know that sounds weird but with my stim messing up and it is again on sleeping mode I can hardly sit still long enough to do any homework! Thanks again everyone for your support and encouragement I really appreciate it! Take care :hug:'sTara


Tara:hug:

I hope this surgery will happen ASAP.....keep bugging them though;)


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