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-   -   Neupro(R) (Rotigotine) Provided Clinically Relevant Improvements in Health-Related Qu (https://www.neurotalk.org/parkinson-s-disease/134079-neupro-rotigotine-provided-clinically-relevant-improvements-health-related-qu.html)

soccertese 09-30-2010 11:59 AM

Neupro(R) (Rotigotine) Provided Clinically Relevant Improvements in Health-Related Qu
 
http://www.marketwatch.com/story/neu...30?siteid=nbkh

Fiona 09-30-2010 02:54 PM

I totally don't get it - this stuff has been on the market for years - why are they just now or still publishing stuff that shows that it actually helps, and even talking about rats even... are we in some kind of time warp.?

Also, they don't mention the extreme side effects of anixety, panic, frustration and more when they abruptly, overnight, took this product off the US market because they forgot to refrigerate it properly during the manufacturing process (I'm not kidding). Then those of us who were on Neupro had no solutions available to us, no safe way to titrate off the stuff, and it took me three weeks of phone calls to the company, lawyers, doctors, pharmarcists, etc. until I finally got the personal cell phone of a top company exec (by chance) who was the first person to even acknowledge that there was a problem. When you pull a product that people will depend on physically if they use it, without providing any backup or any method to even discern if the remainder of their personal supply was defective or not... Well, let me say that the Neupro sense of customer service significantly worsened my quality of life...

rant, rant, rant. Just saying.

Fiona 09-30-2010 03:58 PM

soccertese -

rant not directed at you. Just my experience with that company... thanks for providing the info

soccertese 09-30-2010 04:58 PM

phew!
that's a relief.

Fiona 09-30-2010 06:40 PM

Quote:

Originally Posted by soccertese (Post 700300)
phew!
that's a relief.

:D yeah, thought perhaps you'd be worried...(not really!!)

But seriously, does anyone know why they do things like that, publish studies that finds a product "useful" years and years after it's been on the market? Ostensibly that was established before we started using it, and they could use their time and resources towards newer projects. Whoever "they" is.......

Conductor71 10-01-2010 12:19 AM

Rats sleep more soundly
 
Quote:

Originally Posted by Fiona (Post 700315)
:D yeah, thought perhaps you'd be worried...(not really!!)

But seriously, does anyone know why they do things like that, publish studies that finds a product "useful" years and years after it's been on the market? Ostensibly that was established before we started using it, and they could use their time and resources towards newer projects. Whoever "they" is.......

It's called Grasping at Straws Syndrome marked by three cardinal signs: an old drug, lurking patent expiration, a desperate attempt to find a new "benefit". In this case, it looks like they are trying to position it as the agonist that doesn't keep you awake all night. Here is the major find:

Preclinical data showed rotigotine increased depth of sleep in rats.


This stuff would be comical if it weren't so pathetic that they have got nothing else going on than to waste money on this.

GregD 10-01-2010 07:53 AM

Quote:

Originally Posted by Conductor71 (Post 700386)
It's called Grasping at Straws Syndrome marked by three cardinal signs: an old drug, lurking patent expiration, a desperate attempt to find a new "benefit". In this case, it looks like they are trying to position it as the agonist that doesn't keep you awake all night. Here is the major find:

Preclinical data showed rotigotine increased depth of sleep in rats.


This stuff would be comical if it weren't so pathetic that they have got nothing else going on than to waste money on this.

As you may recall, Neupro was recalled because it would crystalize before being asorbed into the body. I participated in a study last year to test the "new" formula". My biggest problem was from the adhesive used to keep the patch on.

It is my guess, they are getting ready to bring this product back on the market.

GregD

Conductor71 10-01-2010 10:37 AM

It requires reformulation
 
Quote:

Originally Posted by GregD (Post 700466)
As you may recall, Neupro was recalled because it would crystalize before being asorbed into the body. I participated in a study last year to test the "new" formula". My biggest problem was from the adhesive used to keep the patch on.

It is my guess, they are getting ready to bring this product back on the market.

GregD

It is being aggressively marketed in Europe now, but I believe the FDA is requiring reformulation before it reappears for patients here. It will not be available before 2012. Source: National Parkinson Foundation

BTW, just me being sarcastic with the above post. Not intended to diss anyone's medication. I tried it and it turned my PD into what looked like Ataxia...one movement disorder at a time, please. :rolleyes:

Laura


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