Scared and frustrated
 

This thoracic outlet syndrome can be very frustrating. Apparently my son is a triple crush. He has been in physiotherapy since July. Wrist is improved but elbow and shoulder compression unrelieved. They decided his radial nerve is just "jacked" up. They tried ultrasound on his forearm and it put his hand into a palsy. Now know it is TOS. Surgery to be done in Nov. but doctors are still trying to figure out his first rib. First rib is coming out at c7 instead of below. Don't believe it is a cervical rib just 1st rib positioned wrong. Now taking full chest x-ray to count all ribs to make sure. Blah, blah, blah. Every time we go to the doctor it is something different. Just want him to feel better. He is only sixteen and can't even drive because he can't keep his arm up to drive. At least we are in Louisville so have the best hand and arm surgeons in the world. Just wish we knew what to expect and if this will actually work.

Yeah tos sucks for sure :(

Tell your son's story if you want good advices :-)

good luck.

Stewy5:
If they're performing TOS surgery and removing a rib, you really want a Vascular Surgeon who has experience with many of these surgeries.

Does your son have vascular issues, neurogenic or both? It sounds like he has many neurogenic issues and the success rate for nTOS surgery is not good. He's only 16. I would suggest getting multiple opinions from conservative surgeons before proceeding with our Nov date. Good luck.

Anne

My son also had Tos. He had both ribs removed, carpal, cubital and radial tunnel on both sides. I feel like we are just cutting him up but he has seen improvement after every surgery. Good Luck

Sounds like your son has had every operation I had. It's really really hard to come back from this. Even professional athletes in a whole lot better shape than I ever was lose their livelihood..ie Hank Blalock former Texas Ranger 3rd basemen.