For those waiting for a SCS - what would you LIKE to do again?
 

Ohhhh .. walk without crutches .. even if I have to use a stick, I don't care .. How can we women shop with crutches? So frustrating. I have to buy things that hang off of the handled. No good at all I tell thee!

Dance .. I'd love to dance, moving both feet, rather than sitting in a chair and doing the new dance I invented with my arms .. think zombie moves! :D

Put my foot down and not have such a severe pain shoot down my leg .. ooh, imagine that?

Little steps at first, I know, till I can see what I am able to do ... but I'm so looking forward to learning those little steps.

I'm not going to be able to drive with my SCS on, so that's a shame .. but I can manage now so long as it's not too far .. and just think .. I can drive a little way away, and walk on uneven ground WITHOUT crutches, please!

Get out of bed that little bit quicker ... I've never mis timed going to the loo but I always worried there would be a first time :D:eek:

I'm sure there's loads more ...

This is a great topic!
 

I am most looking forward to taking dancing lessons with my husband and also to be able to plan and have an actual wedding :) I am also looking forward to being able to get around campus without help and being able to exercise again! I used to be able to do those things when my stim was working so I am excited to do those things and even more after this third (hopefully final) surgery! I also have trouble driving or doing much of anything with my stim off, I have to keep it on 24/7 especially without pain meds ;)

I am so hoping to cut down the Oxycontin in particular ... nasty stuff.

It's quite exciting to think that I may have new things to plan .. some things I may not still be able to do, but that will come with trial and error. I'm just so looking forward to doing SOMETHING!

Even though I have my SCS already. I would LOVE to be able to do the painting and decorating around the house like I used to. And all that kinda stuff. My hubby is great:rolleyes:he does his best:rolleyes:but not as good as me:D I just loved it and would change things around on a regular basis. But at the moment its too soon to try!! but who knows;)

Hmmm .. you'll probably get there soon enough re. the decorating.

Right guys... that's me for now .. am having one of those days and I'm better in bed. x Love to all .. keep smiley!

Saffy, you have the best questions!
 

now, I know that getting an SCS will not be a panacea however......it really seems like it when I ponder this question.since my accident I am not able to drive, walk unassisted, sit upright, lie flat, I am incontinent, I can not lift my arms above the level of my scapulas (makes washing hair a bit tricky), bend, kneel, crawl......I suppose this list could go on for awhile as I have 3 year old twin boys -you can imagine so I will end it here. The things I would LOVE to do again (or for the first time):

1) push my boys on the swings!:)
2) go for a "real" walk; kids, dog, husband, nature - the whole bit!:)
3) give the kids their bath!:)
4) travel! I am from hawaii and my family still live their and I would love to go visit but I can't imagine a 6,000 mile trip like this.:)
5) DRIVE!:)
6) Sleep in a bed, I currently sleep in a recliner.:)

I guess this list could also go on for awhile and I know that these seem like little things but right now they seem huge and insurmountable........here is to hoping!:)

Oh My!!
 

I had NO idea you were THIS incapacitated!! :eek:
How do you maintain such an uplifting quality of character!!?

Your thread will be SO great to follow along and see the improvements as they come! And I do believe they will come!!

I have much faith that your life is gonna get better by the day!
Keep up that great Spirit of yours!

Rae
:hug:

I just on my own thread the most feel sorry for me post! god i have no right you are truely suffering lots more than me. I also have two kids 2 and 5 and all my wishes would be the same as yours as far as the kids go but i can still drive and still sleep in my bed and these things are huge as when i was unable to go out i felt so trapped and my living room bedroom became my prison but since getting automatic car and disabled badge i am not as trapped as i once was. I really do hope your pain gets better soon:hug:

Don't be daft .. there are always people worse off than we are. This is the place we can be allowed to moan and groan and say if only .. we all understand!

Everyones pain is so real and some are so much worse than other. I thank God every day that although I have pain its not terminal. Its not going to kill me. I can make the most of what Ive got and get on with it. So if it means that having the stim gives me back some of the things I love doing and KNOW that I will still be alive to enjoy it,........excellent!!!! Your health is your wealth! And knowing that you will be here to enjoy it is great too.....