NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Sorry to Alarm but......... (https://www.neurotalk.org/peripheral-neuropathy/137396-sorry-alarm.html)

invisable 11-04-2010 02:43 PM

Sorry to Alarm but.........
 
I'm alarmed, I just read in non-length dependent neuropathy of unknown cause, cancers of small cell lung, uterine, ovarian can be a cause. Said small cell lung cancer cannot be detected with chest x-ray early in dx. also no other symptoms except neuropathic of non-length variety.........anyone know anything about this???

mrsD 11-04-2010 02:57 PM

Yes, paraneoplastic tumors may cause PN.

http://en.wikipedia.org/wiki/Paraneoplastic_syndrome

These are not really common, and they are alarming, and we have had posts about them in the past. If you search paraneoplastic you will find them.
http://neurotalk.psychcentral.com/se...paraneoplastic
I just found 43 posts, and this will make 44.

I don't like to bring this up, until all other avenues are covered.

amit 11-04-2010 03:34 PM

my neuro
 
said that in paraneoplasic cases - the cancer shows himself very soon and he is violent. so, in your case - you can relax. eat well, do sport and think possitivly.
I change my diet. no gluten, no animal protein, no milk and most of the symptoms disapair. it took 2 months.

mrsD 11-04-2010 04:09 PM

Quote:

Originally Posted by amit (Post 712461)
said that in paraneoplasic cases - the cancer shows himself very soon and he is violent. so, in your case - you can relax. eat well, do sport and think possitivly.
I change my diet. no gluten, no animal protein, no milk and most of the symptoms disapair. it took 2 months.

Good for you! Looks like food intolerances after all?

invisable 11-04-2010 04:49 PM

Thanks.......
 
Quote:

Originally Posted by mrsD (Post 712472)
Good for you! Looks like food intolerances after all?

Mrs. D. for info..........

Amit, I don't feel as alarmed now......

Tulips 11-04-2010 07:25 PM

Invisible

Hi

I recently learned about paraneoplastic syndrome too and how sometimes all of these symptoms can have underlying cancer.
Now In my case it's been 12 yes and I have had so much blood work and MRI and CT for one reason or other that I know that's not the case.

Nonetheless I had my near run a paraneoplastic panel, which was negative.
They can do it with local lab or send it off to mayo or athena diagnostics.

The other part of blood test is pet scan but I didn't do this as I didn't see the point in exposing my self to so much radiation to look for a needle in a hay stack!

So it wouldn't hurt to do blood test if it puts your mind at ease and one more thing you checked off.

rose_thorn98 11-04-2010 09:32 PM

Yes, I've read about this too. I'm going to ask my neuro about testing for it when he gets back, just to be sure.

invisable 11-05-2010 09:11 PM

Thanks Tulips
 
Quote:

Originally Posted by rose_thorn98 (Post 712565)
Yes, I've read about this too. I'm going to ask my neuro about testing for it when he gets back, just to be sure.

I am going to ask for the panel too, I probably would have some other symptoms by now (year and a half) if cancer was present, but it won't hurt to be sure, this mind of mine is on overload.

It is just so hard to imagine all these symptoms with no known cause. It is hard to accept that word idiopathic.

rose_thorn98 11-06-2010 12:12 AM

Quote:

Originally Posted by invisable (Post 712959)
I am going to ask for the panel too, I probably would have some other symptoms by now (year and a half) if cancer was present, but it won't hurt to be sure, this mind of mine is on overload.

It is just so hard to imagine all these symptoms with no known cause. It is hard to accept that word idiopathic.

I know what you mean about accepting it as idiopathic. I feel the same way. I feel that I won't be able to accept it until I've ruled out alot more. What about genetic testing? What do you know about that. There are forms of genetic neuropathy too.

invisable 11-06-2010 01:01 AM

Genetic Testing
 
Quote:

Originally Posted by rose_thorn98 (Post 713008)
I know what you mean about accepting it as idiopathic. I feel the same way. I feel that I won't be able to accept it until I've ruled out alot more. What about genetic testing? What do you know about that. There are forms of genetic neuropathy too.

I don't know anything about this at all. Was never offered a test for genetic factors. I do not remember anyone in my family having neuro disorders, though.


All times are GMT -5. The time now is 03:33 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.