Met Glenn at last night's PN Support Group meeting
 

What a great meeting we had. Lots of information. We had a speaker form the Neuropathy Association who explained about the upcoming Neuropathy Association Neuropathy Summit that will be held in Washington DC, December 3 to December 5th 2010.

Here is a bit of info regarding the Summit. And of course you will be able to find much more information at the Neuropathy Association's website;

http://www.neuropathy.org/site/PageServer



The Neuropathy Summit is being held at:
Washington Hilton
1919 Connecticut Avenue NW
Washington DC 20009
Tel - 1-202-483-3000

Under the heading Physicians/Scientific Conference Program
Friday, December 3rd, 2010, the topic is:
"Mechanisms of and Disease-Modifying Treatments for Peripheral Neuropathy

On Saturday, December 4th the topic is:
Mechanisms of and Treatments for Neuropathic Pain
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Under the heading Patients Conference Program
Saturday, December 4rd, 2010-LIVING WITH NEUROPATHY
Sunday, December 5th, 2010 - MOVING THE NEUROPATHY FIGHT FORWARD

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Now, here's what happened at last night's meeting.

I was sitting there and a man walks in and he's talking to someone and I hear him say "Melody knows me". I brought my head up to where he was standing, I did not recognize him, and he mentions something about Sproutman, or sprouts (something about sprouting). Who did I think he was? The Sproutman himself, Steve Meyerwicz.

I got all excited, ran over to him and said "you're the Sproutman, oh my god".

He's smiling and said "Well, I'm not actually the sproutman but you know me'.

There was a lot of background noise in the room so I wasn't making out what he was saying to me. All of a sudden I hear the words 'GLENNTAJ" and a bell goes off and I said: "Oh my God, you're Glenn!!!"

I threw my arms around him and we were smiling. What a wonderful opportunity to finally meet him. I actually had someone come to the meeting who I have been corresponding with on Neurotalks for quite some time.

I turned to Alan and the others and said "Do you know who this is, this is Glenntag from Neurotalks"

I then took some short videos which I will be uploading to youtube soon.

I shall share them on this thread.

I enjoyed this meeting immensely. And I brough muffins and Glenn ate my muffins and I got a video of that. lol

Lots of questions were asked and answered at this meeting. We even got a chance to tell the rep from the Neuropathy Organization how it is very unjust not to be able to get custom shoes just because a person does NOT have diabetic neuropathy, but has neuropathy from other reasons. Many other people fired questions at her and she was very gracious and answered as best she could.

She said this would be discussed (among MANY topics) at the Summit.

So I'll be back later on with some links to the PN meeting.

Melody

Glenn and I have talked on the phone a few times. I found him very engaging and very intelligent! ;) I enjoyed the calls immensely.

I am very glad he will be at that conference. I am looking forward to his reports... got that, Glenn? ;)

We're all counting on you!

Hi Mrs. D.

Here's the link to the clip I made of Glenn at last night's meeting.

And the other members who attended the meeting, well many of thought that Glenn was a medical professional. How cool!!!

How lovely that I get to share this with all of you. I have literally changed my life by coming on this forum so it's a pleasure to be able to do the Flip recorder thing and share the PN meetings with all of you.

http://www.youtube.com/watch?v=s-WFkd7H4TQ

Melody

Hi, Melody and Glenntaj -

So nice to put faces to names - thanks, Melody, for this video.

I'm jealous. If I'd never moved away from my New Jersey home (just across the river from Manhattan) would have been able to join your PN group. Rats!

Sheltiemom

Ah, I see you live in Ohio.

Not to worry. I have my Flip. Anything important that is ever said at these meetings, I'll capture and share it on these forums.

Honestly, I have never used a video camera before in my life. Someone bought this for me, and I haven't stopped yet. It's the coolest little thing and it should be named "Video recorder for dummies". That's how EASY this thing is.

Years ago, when everyone had these big old camcorders that cost $799.00, well we never got one of those. I always said "maybe some day someone will make a little gadget".

HELLOOOOOOOO!!!!!

lol

Melody

wow glenn i met you before, you cut me off on Bell Blvd.!

ha!

Oh that is too cute.:hug:

I want whatever you guys take for all that energy!:D

(Excuse me, I have to go clean the baby barf off my arm....those muffins sound good......)

Well, I can only speak for ME, but I take 5000 methyl b-12 just about every day. Best thing I ever did.

Believe it.

We have talked about Methyl B-12 at these meetings.

Hope all is well

Melody

I must not be taking the right stuff, lol. I will be doing some online shopping for some of the supplements suggested on here. I noticed the Vit. D helped a lot, but, I am still exhausted all the time. Maybe it is running after a 9 month old all day, but phew....I am all tuckered out.

BTW, you both look very darn good on the video! (No support group around here.:()

Cyclelops:

Do you know your B-12 level, and your Vitamin D level?

mel