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-   -   What to say and PBS (https://www.neurotalk.org/multiple-sclerosis/139015-pbs.html)

poochie 11-21-2010 03:00 PM

What to say and PBS
 
This morning at church as I was going in the door a lady, I don't know very well, said to me "Oh, your limping this morning" which is what I do most of the time, I was taken by surprise and just smiled. What would be a good answer without trying to explain everything.

Also, I was watching a PBS story about alzhimers and the doctor told the lady 3 words he was going to ask her to repeat in 5 min, and then just kept talking to her, in 5 min he asked her the words, she couldn't remember, neither could I, I don't have alzheimers, I have MS. I couldn't believe after 5 min. I could not say the words, I knew my memory was bad, just not that bad, just thought I'd share that, how is your memory?

nikki79 11-21-2010 03:08 PM

When I don't feel like explaining I just say "My legs are tired today" and leave it at that. MS can affect memory and cause other cognitive issues also. I think the 5 word thing you saw may be difficult for most people to do, especially if they are words that are not frequently used by the person.

SallyC 11-21-2010 03:48 PM

I must have had alzheimers since I was 10 then, because I have never been good at short term memorie games and I'm slow.:rolleyes::D

Kitty 11-21-2010 03:51 PM

I've finally gotten to the point of feeling like I don't owe anyone an explanation of why I'm limping unless I feel like sharing. If I don't want to talk about it I just smile and say "yeah, how 'bout that!". Usually that works. Also, I've gotten much more cautious about what I say to others who limp or have an obvious disability...especially if I don't know what that disability is.

As far as the memory thing goes I've found that my memory is better some days than it is on others. My cognitive abilities have definitely been affected by my MS and I probably notice it more than anyone else. My word recall is terrible. I get really frustrated at times.

I was talking to my son on the phone the other day and I said "did you ever hear from" and the cat jumped up on the table that very moment and knocked over my coffee. My whole train of thought was derailed and I didn't get to finish my question to him. Poof! The whole thought was gone. :confused: When he asked me what I was going to ask him I told him I'd forgotten and would have to think of it later. He kept naming things that he thought might have been the subject.....I finally told him that the more he tried to make me remember the longer it would be before I actually did! :o

I did finally remember what it was I was going to ask him but that's how easily I can be sidetracked and gotten off course. I do it multiple times throughout the day. I have kitchen timers in various spots in the house so I don't forget things like having the iron on, or leaving a pot cooking on the stove. If I have to call someone or be anywhere at a certain time I have to set the timer to remind me. Otherwise I'll get distracted and completely forget what it was I was supposed to do. :rolleyes:


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