How your pain effects friends and family - coping for them.
 

My elder daughter and I are so alike that we always fall out .. she's the one who will irritate me and I will grumble at.

It must be extra hard for family and friends when they are with someone who is in real bad pain all the time .. and taking drugs that alter your personality and you can get withdrawal sympstoms from even after 2 hours after missing a dose ..

How do your family and friends cope with you when you're at you're snappiest .. or when you're crying for absolutely nothing? What can they do?

They don't know that this is "normal" for sufferers of chronic pain and I really think there should be support for them.

There may even be one on this forum somewhere, but as this is the only place I come to, perhaps if there is, someone can direct my post there.

Thank you xxx

Dearest saffy
 

:grouphug:
This is the perfect place to post this very heartfelt question..,! Thank you!
I am typing this on an IPAD for the very first time, so forgive me if my typing seems a bit sketchy ;).
I am in the labor room watching my precious daughter SLEEP thru her contractions :cool:Because she just got an epidermal block,!! This is SO AMAZING!!

I am feeling so high on life right now because my grandson will be here within the next few hours!! I have so much Id like to say....but don't know where to start.....plus I am very awkward on this amazing little IPad thing. :o

I better push the post button on this to see if I did this right and I don't think I clicked on the remember me button, so I'm afraid this will time out on me before I get it to send.....

HI Saffy, I think you brought up a very good point and I agree that it is hard on family and friends when you are sick and in pain all the time. My husband is pretty good for the most part and he is very supportive and even helps me out at home and with all my doctor appointments, he even had to learn about all my medical care including my cath treatments that I need. Sometimes we do get into it because he does not truly understand why my emotions are so crazy. At those times I lean on my mom and she always understands because she has many of the same conditions I have and has been in chronic pain too. She is really good at being supportive and encouraging and she makes me see things in a different perspective. However, I also have a therapist and she is really great and I think she has helped me learn how to deal with many of my health problems that won't ever go away. I tend to get very depressed and she is a big help too. My friends have stopped coming around and I never see anyone anymore so really the only interaction I get from them is on facebook. It is hard though for people not in pain to understand and it used to make me sad about all the friends I have lost but now I realize they were not that good of friends to begin with ;) I consider myself very lucky though because I do have supportive people in my life and I used to not have any support at all and went through it all by myself :( Hope that answers your questions! Take care and have a good day! :hug:'sTara.

Well howdy doody wallawalla bing bang !!!
 

It worked!! Oh boy am I hooked on this. :D

One of the neatest things about NT is that there are so many different places To share a discussion such as this. There is a Support for Caregivers somewhere in the main menu....that would be a fine example of a place to talk about this....but to be honest I am glad you started this thread right here. When I get home from hospital I will love to get back on here and share some. Thoughts....
Meanwhile Im sure others will be happy to jump aboard your thread.

I hope everyone here is doing good.....low pain levels.....
Higgs all around from a VERY EXCITED NANA RAE!!!!! Loops I sAid HIGGS all around but I don't know how to backspace to correct. :p but Im sure you know I meant H U G G S :rolleyes:

......I just love this place, cuz somehow you all put up with me. :grouphug:

RAEEEEEEEEEEEEEEE Im so excited for you all!!!
 

I hope by the time you get to read this on our 'IPAD' that you will at last be a nana!!:hug::hug: Do let us know ASAP!!!!! well when you have back down to earth that is;)


Saffy Ive had some very bad days indeed but I will say that my family have been great. My husband, bless him, is probably at the end of his tether with me, but he never gets annoyed with me at all. We actually at times have a joke when I complain about my back etc, he would say, 'oh I know how you feel, my ears are killing me too boom boom' But overall he is very good and caring. My daughters are excellent too, my eldest one in particular. She is always here with me looking after me, especially before I had the stim and she had the baby.
People are generally very good. I try not to complain too much if I can but overall they have been very good...........

I'm just on way way to drugged up
Sleep time. The only time I can sleep at the mo so I will wish you all a good night and thank you for your involvement inthis thread. I awIt the baby news xxxx

I have a daffy little I pod touch which fits in my purse perfectly but takes some time to type on.

Joy JOY It's a BOY!!
 

http://dl10.glitter-graphics.net/pub...ar500lxyn4.gif I'm in Heaven!!

My Grandson was born yesterday 4:51 pm (CST) !! :Heart::Head-Spin::Heart:
7 lbs 6 oz ...... 21 inches bundle of JOY!!!
....... Jackie, you were RIGHT!! There's nothing that compares to this level of Joy!! My head is in the clouds!
What a miracle to see my Grandson being born!!

Thank you my dear friends for your prayers and well-wishes :grouphug:

I hope Jenna's headache has subsided! I've been praying for you!! :hug:

Saffy, I'm so glad you started this thread regarding family and friends and how we cope.....
The number ONE thing I learned from being my daughter's 'birthing coach'.....is the simple nugget of truth that says....."MATCH HER MOOD" !!
If our families and friends could only understand that we live with our circumstances every day......all we REALLY 'need' is ..... understanding.
We will have good days and bad days.....
Sometimes saying 'nothing' says it all. Just a loving hug. Understanding.

This is 'Thanksgiving' Season......
I am so very THANKFUL ...... :grouphug::grouphug::grouphug:
God Bless!
Rae

Hi Rae
so happy to hear your grandson has arrived safe and well!!
jenna:grouphug:

Congratulations nana Rae
 

Rae how wonderful your little grandson has finally arrived. I hope your daughter is doing well too. And hey don't you forget to rest up too. Because nana duties are tiring too. ;). But enjoy enjoy enjoy I'm so exited for you all

Give all our love :hug:

Take care

Jackie :hug: