911 - levodopa carbidopa and tactacardia
 

:confused:

I am not well at all - my spiraling down
started with injuring my sciatic nerve by falling many times
my life is turned to pain - and now my meds have caused me to start having
tactacardia...
cant live with em - cant live without them???
last er trip - is the last time I will call 911
such cruel treatment - unbelievable - unable to speak - mouth seems frozen
ER doc yells at me - whats wrong?
i tried to speak was laughed at by the er nurses or immature techs...
then the doctor looks at me, and yells - you arent helping me???????????????
and with this my last post...
if you live in a 3 neurologist town, I would suggest moving while you are still well...
I live alone - so next time my heart races to 200 beats, tactacardia...
I will not call 911 - I will pray...
my race to finish - is clearly done.

I am soooooooooooooo upset - I feel crushed
they gave me benedryl - because I am allergic to so many pain killers
I thought the benedryl was going to make me sick to my stomach
then having zero levodopa/carbidopa I was shaking of which the nurses should have checked me - not at heartlandhospital in st joseph, mo?
I was sweating profusely -and they put warm blankets on me...
I finally had a friend get me water, so I could get somerelief from an 25/100
instant sinemet in my purse -and movement started again so that I could move...what a huge blessing my friend was!
the technician walked in and told me you cant have the water! I will have to ask the doctor for pills? and I said weakly - my voice hoarse and dry
I want this IV removed from my arm now!
She retorted I will have to ask the doctor?
and I said the best I could - I am checking out of here - on my own ...
she brought the papers to me quickly and I was put in a wheel chair, and lifted to the car, and carried back into my house...
my dear - I thought to myself -if I was old with PD would they have given me abit better care ?

I dont know the answer, but that day --- was soooooooooooooo horrid,
I wont call 911
not in saint joseph mo...
why?
they always say - you are in end stages of PD, we can do nothing for you?
frozen to the bed - horrible!

a suggestion
 

I am so sorry to hear of this, what a horrendous experience and a worse testament to the medical establishment there. I have a couple of thoughts for the future:

1. keep in your purse somewhere a note saying you have PD and what you HAVE to have, maybe a wrist band or similar? That way if you cannot speak they will at least have a clue;

2. write a letter to the state board of medical examiners naming the folks who treated you so horribly, name names and specifics, and cc the director of the hospital and the ER head guy/gal. I might even include a brief description of the classic PD symptoms so they are halfway educated for the poor PWP who might land in their ER in the future;

3. take your friend who was with you for a treat, for the both of you....her, for being by your side, and you, for enduring the ordeal.

thank u - dear dear friend
 

yes - helen mirren - tshirts should be made for the love of the parkies to wear...
peace to your heart

email of state board of registration for missouri MDs and Nurses
 

Dear lou_lou,
you could copy most of your post about the treatment you received and did not receive at the hospital and send it to the emails listed at the bottom of the contact info posted here. Madelyn

Missouri State Board of Registration for the Healing Arts
Tina M. Steinman, Executive Director
3605 Missouri Blvd.
Jefferson City, MO 65109
(street address: 3605 Missouri Blvd., 65109)
(573) 751-0098 / Fax:(573) 751-3166
www.pr.mo.gov/healingarts.asp

email address:
healingarts@pr.mo.gov


Board of Nursing
3605 Missouri Boulevard
P.O. Box 656
Jefferson City, MO 65102-0656
573.751.0681 Telephone
573.751.0075 Fax
800.735.2966 TTY
800.735.2466 Voice Relay
nursing@pr.mo.gov
http://pr.mo.gov/nursing.asp

i don't know what to say
 

i can say that i've been most places you and cs are talking about. just get thee to a physical therapist or a different specialist - don't give up.

dear madelyn
 

:hug:
dear one,
i thank you from my heart, and much peace to you ~
blessings to you my friend,
louise

dearest paula
 

thank you! I really am thankful for u,
are you doing weller? than moi - I hope...
I pray for all my parkies here, I always pray the yopd see the cure...
I feel like giving up, so thank you for the reminder not too! :hug:
I am so weak - I called my pharmacist who has been my friend for many years,
he said to take potassium, for my heart - because - old name -
sinemet depletes the potassum from us, feel better today, but very very
weak still...
love,
louise

nightmare of nightmares
 

louise, your post leaves me speechless, as it must many of us earlier-stage PWP as we bask in our remaining blessings--Denial and Hope--like a bikini-loving old man at the beach in autumn...you prepare the way...you are the scout...the war-weary reporter from the front lines...your cry in the night pulls me toward you like a mother to her wailing newborn....aware she cannot protect herself let alone her child...still, scream away...we hear you...we are here with you..."it's all spirit now" said my sister, remember?