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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   SCS Trial (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/140654-scs-trial.html)

Lisa in Ohio 12-12-2010 11:22 PM

SCS Trial
 
Hi Friends, I just wanted to let you all know that this past Tues. I started my SCS trial. I have not felt this good in a very long time, over 8 years. I am just thrilled about this. It will come out on Tuesday, and then I suppose that there will be another long battle with WC over the permanent implantation. I just wanted to put out my good news and hope that someone here will be encouraged by some good news. Blessings to all, Lisa:D

lovemydog 12-13-2010 01:19 PM

Oh that is excellent news. I had always been hesitant about SCS implantation because you hear good things and bad. I am thrilled that the trial worked out so well for you. Here's to hoping everything at WC goes smoothly and quickly for permant implant!

SandyRI 12-13-2010 05:53 PM

Good luck Lisa!! Keep us posted....

XOXOX Sandy

Albie 12-14-2010 06:53 PM

So glad to hear your trial is working. As far as WC the biggest part of your battle should be over. It took me 8 months and a mediation conference to get the trial approved and as my Doc explained to me that once they approve the trial, if it works, they are almost forced to approve the perm. My trial was a huge succsess and I was immediately approved for the perm which was done 2 weeks later. Best of luck and not to worry your biggest battle should be behind you.

Happy Holidays!

leiea 12-15-2010 10:49 AM

Quote:

Originally Posted by Albie (Post 725792)
So glad to hear your trial is working. As far as WC the biggest part of your battle should be over. It took me 8 months and a mediation conference to get the trial approved and as my Doc explained to me that once they approve the trial, if it works, they are almost forced to approve the perm. My trial was a huge succsess and I was immediately approved for the perm which was done 2 weeks later. Best of luck and not to worry your biggest battle should be behind you.

Happy Holidays!

hi
sorry wc and perm?
im thinking of the scs trial....which things would you try before the scs?
xxx

Lisa in Ohio 12-15-2010 08:16 PM

Hi Leiea and welcome to this great group of people. I was not diagnosed very early with what ended up being RSD. I have been on a cocktail of various pain medications for over 8 years. Before the trial, I have had 8 surgeries on my arm with bone grafts from both hips and a total wrist fusion. After my RSD diagnosis, I did not have a very good PM doc and she just pushed pills. I found a new doctor and fortunatly he is very aggresive with treatment. I have had several injections and stellate ganglion blocks. I then had the SCS trial which ended yesterday. It was very successful and I had really great results. I have not had much time to keep up with everyone since I am back in college, so I don't know anything about your story, but I hoped this helped a little. Lisa

finz 12-16-2010 01:46 AM

I understand the WC frustration hon !!!!!!!

I hope the SCS works out for you Lisa. I've read so many horror stories on here about the SCS, I admit I'd be hesitant to try it. On the positive side though, I find my TENs to be very effective, but have issues with constantly sweating off the leads, so an iplantable one seems like it would solve that issue.

Best of luck with this !

Lisa in Ohio 12-16-2010 11:21 PM

That is almost exactly the sensation that you get with a SCS. After a while I didn't even notice it but did notice how much better I felt. My arm and hand were warm again, alot of the burning was gone, I didn't have any spasm episodes and the skin looked healthy. What great changes, much worth the discomfort of the trial site.


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