JUST TOO YOUNG - the story of my life...
 

JUST TOO YOUNG - the story of my life... part 1

When I was seventeen I was diagnosed by Doctor DuMont, my general practitioner, by glucose tolerance tests as a Hypoglycemic. My mother was hypoglycemic as well, so for many years now I've tried to eat smaller meals to help balance the sugar. I've always been asked "Are you shaking?" or "Are you cold?", but after a while I got used to people asking. My mother's aunt had Parkinson's Disease and has since passed away, as well as her sister who is still alive. Both were diagnosed in old age.

After the death of my mother, who died of breast cancer in 1988, I moved with my husband and son to the East Coast in 1990. Leaving my family behind in the Midwest was very hard, we moved again from Hanover, New Hampshire to Virginia Beach, Virginia in 1991. I took my son to his pediatrician, Dr. Maxine Spool, who had four fingers on each hand as four toes on each foot. She introduced herself to us by showing her handicap, and explained that God had made her this way so she would be able to go to school and become a doctor so she could help children.


Dr. Spool was treating my son for scarlatina, but told me that I needed to go to a specialist because she believed me to have Parkinson's. I told her that I was hypoglycemic, and she told me that based off how I was shaking that something more serious was going on and that I should see an endocrinologist, so I did. The endocrinologist ran a series of tests and afterward stated that while he didn't know what was wrong with me, he knew that I didn't have Parkinson's Disease because I was just too young for Parkinson's Disease.


My father passed away in 1994, and at his funeral I was so upset that I was shaking uncontrollably and couldn't be calmed down. After I came back from the Midwest, back home to Virginia Beach, I made an appointment with a neurologist. His name was -

written w/ help from my son...:hug:YouTube Channel:
www.youtube.com/cestlouise
In Search of a Champion (Part 1):
http://www.youtube.com/watch?v=uxS7jiq4-Zc
In Search of a Champion (Part 2):
http://www.youtube.com/watch?v=E4JqqPXegfo
In Search of a Champion (Part 3):
http://www.youtube.com/watch?v=yidIwF5EghM
The documentary is separated into three parts because YouTube won't allow one video to be that long.
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God bless you and your dear son. Looking forward to the 2nd installment. So sorry for all your frustrations. :hug:

dear twinkletoes!
 

dear one,
I have missed you!!
I have been having a battle w/ dystonia - complicated by falling and damaging
the circuts of the sciatic nerve, sometimes now - the end stages - it is called
by some, however - I would rather not think of it at all...
anywho, it has effected my throat - and I feel I'm being strangled by the misfiring of neurons...it's the most challenging activity / a fight I can not win
---
the light at the end of the tunnell
so far is a drug - which I do not like them, always hated being a pill eater for the last many yearrs...
yet the nerve pain killer that seems to calm it all down - I am so thankful that I had a caring neuro at the Kansas University ER- gave me neurontin -/ also known as
gabepentin!!
:hug: God Bless twinkletoes!

i will be adding more to my story
 

as we all are going through this journey
I will try to encourage you, as my journey is not finished
and I have had PD for 20 years, and now is my time for courage,
and hold on to my faith in God...and believe in miracles - as I always have...
I have seen them first hand -
I was hit by a semi truck w/PD - the ER doctor told me - I should have been dead, and he told me - I had good juju - he was from New Orleans Louisiana
but I will get into that later on in my writing, I never wanted to write a book,
I just want to share my life experiences with you all... :grouphug: