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-   -   Is this Aspergers or something else? (https://www.neurotalk.org/autism/143251-aspergers-else.html)

Buffheart 01-17-2011 05:33 AM

Is this Aspergers or something else?
 
Hi all! I use to be semi active here about 2 and a half years ago, but I haven't really been on since then. However, today I am in need of some help for a problem that I cannot explain.

This is going to be a long story, so be ready. Okay, so this mostly started in June 2009. I was working at a summer camp during the summer of 2009. The sessions were from Sunday-Friday. For the first week everything went great. Then the beginning of the second session (every session began on Sunday) came and I was fine in the morning, but in the afternoon I began to feel terribly nauseous. I took some chewable Pepto and it all went away. Then the next Sunday I felt sick again, so I took some Pepto and it went away. Around week 5 or so, always on Sunday, I would take the Pepto and I noticed it wasn't working well, so I took some more again and it went away. For the next two Sundays I had to keep taking double dose Pepto. Finally, Sunday of week 8 (there were 9 weeks total) I took double Pepto and then threw up. This was in the morning and afterwards I felt fine. The Sunday after that, which was the final session, again I took double Pepto and again I threw up, this time after dinner. Although I was sick of it (hahaha) I thought the nausea/vomiting was no big deal, probably something from stress.

Things only got worse after camp was over. I began getting more and more nauseous more and more often. Almost every time I felt nauseous I would throw up soon after. For about two weeks in September I was throwing up 3-4 times a week. It was usually in the morning, but not always. Sometimes I would throw up my meds, the pepto, sometimes food, and sometimes water, which I would drink to rehydrate myself. I literally couldn't have anything in my stomach. I began taking my meds about a hour later than usual, just to see if that was what was making me sick. It wasn't. Besides, I had been on the same meds for 4 years with no problems.

It gets worse.

I am not the type of person to get migranes and/or headaches, but come October of 2009 I had three migranes which resulted in even more vomiting. I would usually feel them right behind my eyes, or right behind my temples. They would usually come on suddenly and it felt like someone was stabbing my head as it would only hurt in one or two spots. One time I swear it moved from my right temple, to my right eye, then to my left eye, and finally to my left temple.

In November the nausea and headaches went almost completely away, only to be replaced with sudden rage attacks to the point that I would shut myself in my room for hours. I was afraid I was going to snap and hurt my cats or something because when I became angry I lost all control.

This lasted until January of 2010 when I started to become depressed. I am in college and I started skipping classes. I would catch the bus to school, sit for a few minutes, catch the bus back to my stop, and walk 20 minutes home, up and down hills, in the cold and rain. I just couldn't do it. I couldn't handle the work, I couldn't handle talking to anybody, I would get angry or sad when I was around large groups of people. I never wanted to leave my room.

I didn't tell my parents, who were paying for my classes, that I wasn't going to school until May. That means I skipped classes for 4 months straight.

Throughout this time I was not sleeping well. I would be up all night and sleep all day. There were times where I would be up all night AND all day. I would go to the store and buy $15-$20 worth of candy and force myself to eat it. I had a job, but I quit because I couldn't handle it.

Then, in May 2010, I took some Benedryl to help me sleep, but I ended up having a grand mal seizure, was comatose and intubated for 1 or 2 days, in the ICU for about 4 days, and in the regular floor for about 2 days after. That was when I quit my job and officially dropped out of school.

In June 2010 I was still depressed, still having rage attacks, and still not sleeping well. Since about November-December 2009 I started having these self harm "urges" like I had to do something harmful to myself. That landed me in a psych hospital for three weeks in June 2010.

While there I still had rage attacks for the first week, then everything just seemed to stop. I wasn't depressed, wasn't having rage attacks, wasn't crying. But that wasn't good. I wasn't crying when I should have been. I couldn't cry. It just seemed to get in the way.

I was released for and for about 2 months afterwards I would be somewhat fine all day, and then at night (it seemed to be around 10) I would just feel hopeless. Even if I was having a great day, at night I would have what could be described as panic attacks. I just felt like nothing was worth it. Again, even though I should have been crying, I wasn't. I would even *try* to cry, and it just seemed unnecessary.

Things have been better since then, except for a strange dream I had in September. I have not been diagnosed with Epilepsy or seizures, but in September 2010 I had a dream that I was at my doctors office. I was sitting on the table and I just slumped over and fell onto my side. My eyes were open and I could see and hear everything, but I couldn't speak or respond. The doctor told me I was having an absence seizure and not to worry. The strangest part is when I woke up. Everything felt heavy and I couldn't open my eyes at first. When I did I felt very dizzy and my vision was black. I was very confused and it took me awhile to get the energy to get out of bed. It took me a bit to remember my dream.

As of January 2011 I still am not in school. I don't have a job. I don't usually leave the house. I don't buy candy much and I feel better, although I worry everyday. I worry this same thing will happen.

My biggest questions are:

1. Does anybody think that the nausea has to do with anything else? I do.

2. What do you think happened? I am at a loss. The severe nausea came out of nowhere, and it all seemed to snowball from there.

Please, please, PLEASE, post any and all questions and suggestions! I am so afraid this will happen again, as it was all so out of the blue.



Before I leave I want to explain the rage attacks. Although I generally get annoyed very quickly I have never had rage attacks. The attacks would come out of nowhere, even if I was alone all day. Anything and everything set me off. I remember one time having a decent conversation with my mom on the phone, and when she hung up I suddenly became so mad that I threw the phone as hard as I could across my bedroom where it crashed into the wall.
After my seizure in May my rage attacks, still random, would consist of me screaming and yelling, which I never NEVER scream. I clearly remember taking a shower one time when I rage attack came on and I was screaming and yelling and banging my head against the shower wall. My lips started bleeding.
In the hospital in June 2010 when I had a sudden random rage attack I would sit in the halls (because I wanted staff to watch me in case I did something bad) and I curled up in a ball. The staff would have to clear all the chairs from the hall because I wanted to throw them. These attacks would last for about an hour and then go away on their own. Afterward I would go and do a puzzle or something. Just like it never even happened.


Our dog was less than a year old when we got him in December 2009 and he was with me everyday. He saw my rage attacks, he saw how I would come home and sleep for hours, how I wouldn't leave my bed somedays. To this day I think he is still afraid of me.

BTW I got 5 cavities from throwing up so much. And I really do have Aspergers.

Buffheart 01-17-2011 05:35 AM

I have always had random bouts of nausea my whole life. They come out of the blue, but before August 2009 they had never caused me to actually throw up, and they would usually happen maybe twice a year. Pepto made them go away.

mrsD 01-17-2011 08:08 AM

I think you need to see a good Gastroenterologist (GI doctor).

Summer camps can expose you to contaminated water. Giardia

https://health.google.com/health/ref/Giardiasis

you don't need all the symptoms to have this...and it often goes dormant and recurs.

It is diagnosed by a stool sample.

Also investigate gluten intolerance... which is common also.
It can cause nausea and other symptoms.

Also H. pylori, can cause stomach ulcers. A positive response to Pepto, suggests this too. So I do think you need to see the appropriate doctor, to find your answer.

pabb 01-17-2011 08:33 AM

and the seizures and pepto use would fit gluten intolerance/celiac disease as well......good luck

Buffheart 01-17-2011 03:35 PM

I have had multiple blood tests and an endoscopy done. One of the blood tests was a little weird, but the endoscopy didn't show any damage of celiac, so the GI doctor so I don't have celiac.

mrsD 01-17-2011 03:42 PM

You can be gluten intolerant without having damage.

please read this site:

http://sites.google.com/site/jccglutenfree/

also our gluten forum has posts about that.

Buffheart 01-17-2011 04:25 PM

But what would cause it all the change so quickly? I have always had random mild bouts of nausea, but never vomiting. Also, can you explain the other things? The anger, depression, rage, etc? And how come I don't feel that way anymore? I haven't changed anything in my diet, so how can the nausea/vomiting be greatly reduced magically?

pabb 01-18-2011 08:08 AM

one problem may not be the cause of all things! However celiac/gluten intolerance has been known to wax and wane......there is no guarentee that this is an issue for YOU, however it is a treatment that will not hurt you, no matter what the issue is.

JKelton 01-18-2011 08:09 AM

I don't know what this has to do with Asperger's Syndrome to be honest. Rage attacks are not part of the diagnostic criteria, and while some children with it may have very bad tantrums, adults are seldom physically violent when they become upset.

I think you need a good workup by a good doctor.

Buffheart 01-18-2011 03:50 PM

You just answered my question. I know people with Autism can suffer from GI problems and meltdowns, but since mine seemed to be so extreme and random I was wondering if it was related to AS or not.


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