NeuroTalk Support Groups - Chiari

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- - Chiari - post-surgery (https://www.neurotalk.org/new-member-introductions/143336-chiari-post-surgery.html)

Chiari - post-surgery

Morning all. This is my first post. I just had chiari surgery on 12/06/10 and started back to work part time last week and am trying full time this week. My results to date have been wonderful! I have had neck, shoulder, and the back of my head pain for as long as I can remember and could never figure out why. I was diagnosed with fibromyalgia about 8 years ago and since then I've always been told all my aches and pains are my fibro. Long story to get to the chiari, but I figured it out and had the surgery. Very painful the first few days (in ICU for 2 days) and hospital for 4 days. To date I have not had any headaches in the back of my head, in my shoulders, or my neck. I just have to rest my head after a while because my neck gets tired, but no pain! I'm just so ecstatic and hope it continues once I am completely recovered. My neurosurgeon told me it's a long process (6 mos to a year), but I am willing to do whatever it takes to ensure that I become pretty much pain free! Has anyone else had this and how was your recovery?

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Hello, and welcome to NT! This is such a great place with many friendly, caring, and helpful people.

We're so glad you found us.

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Hello and Welcome!!

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Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

Quote:

Originally Posted by msdoo (Post 736050)

Morning all. This is my first post. I just had chiari surgery on 12/06/10 and started back to work part time last week and am trying full time this week. My results to date have been wonderful! I have had neck, shoulder, and the back of my head pain for as long as I can remember and could never figure out why. I was diagnosed with fibromyalgia about 8 years ago and since then I've always been told all my aches and pains are my fibro.

Long story to get to the chiari, but I figured it out and had the surgery. Very painful the first few days (in ICU for 2 days) and hospital for 4 days. To date I have not had any headaches in the back of my head, in my shoulders, or my neck.
I just have to rest my head after a while because my neck gets tired, but no pain! I'm just so ecstatic and hope it continues once I am completely recovered. My neurosurgeon told me it's a long process (6 mos to a year), but I am willing to do whatever it takes to ensure that I become pretty much pain free! Has anyone else had this and how was your recovery?

Hi. I too had Chiari surgery in 3/06. It definitely helped and it did take a year to recover completely. I also have Fibro, connective tissue disorder and TOS. Trying to decide on getting the TOS surgery. Good luck on your recovery! Sounds like you are doing pretty good.

Sue

Quote:

Originally Posted by sueofct (Post 737922)

Hi Sue - what is TOS? Glad that the Chiari surgery helped you as well. I know it's a long recovery, and I'm noticing changes and am journaling them as I notice them, but I'm for it as long as it keeps up as good.