To de novo pwp about PPMI
 

The Parkinson’s Progression Markers Initiative (PPMI) is an observational research study to identify biomarkers of Parkinson’s disease (PD) progression. A biomarker is a substance or characteristic in our bodies that is associated with the presence of disease, or that changes over time in a way that can be linked to the progression of disease. An observational study means that study participants will undergo numerous tests and assessments of bodily processes related to PD, but will not receive an experimental drug or treatment. This study will use a combination of imaging techniques, collection of blood, urine, and spinal fluid, and clinical tests.

The information gathered from these procedures is critical to the future development of new and better treatments for Parkinson’s disease. PPMI is the first clinical study to assemble a population of sufficient size to collect this information, draw meaningful scientific conclusions over time, and try to develop better ways to measure the progression of PD.

read more here

If you are de novo, you have a unique opportunity. There is something you can do to help yourself and ALL people living with PD: look into joining the MJFOX PPMI study. It does not involve an experimental drug or treatment. The study is looking for 400 de novo pwp, and 200 people who do not have pd. As Fox says: "Be a part of the answer."

Jean B :grouphug: