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Hi Everyone
Well it's been awhile since I had a question or two..I wonder if anyone has had a steriod shot in the sacralitic joint..Pardon the spelling just early morning fog!I had one to take away pain in my back , hip and in my right leg..Well that worked for four days ahh nice!Well went back to the pain clinic and the Dr says He wants to freeze then burn out the nerves that are causing all the pain..Has anyone ever had this done very nervous to do more damage to my nerves.I was told that this is safe and that they will freeze the damaged nerves so He gets the right ones..Hmm the hair raises when a Doctor says one thing then things turn out more fudged up.Just wondering if this is another promise that ends up being another one that turns out to be another nitemare...My right leg is in so much pain always so if it is made worse I am not sure about this...Well Take care hope there is someone that has tried this....
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I'm thinking that if the steroid shot worked, there must be local inflammation causing the pain. If it's inflammation that can be helped by steroids, maybe it isn't nerve pain from MS? Have you exhausted every other way of reducing the inflammation? Physio, diet changes, other anti-inflammatories, etc.?
I'm with you on hair raising with these kind of procedures. I think you have to really weigh the risk/benefit factors. If you're incapacitated by the pain, then the benefits probably outweigh any risks. I'm a chicken, though, so that always affects my thoughts/decisions! I hope you find some relief, one way or the other - I occassionally annoy my sciatic nerve and it's no fun. (my right leg, too!) C |
I agree, if the steroids did seem to help, why not try a different approach to anti-inflammatories instead of freezing and burning out nerves? I am all for pain management but that seems a little excessive to me. I would definitely try to seek a second opinion before opting for this one. We are not talking about a pill that may or may not work that you can just stop taking, we are talking about intentionally destroying your nerves. And as we can tel tell you from experience...once a nerve gets destroyed...well, it tends to stay that way.
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Hi Jeep, nice to see you.:)
I'm so sorry for your pain..:( I agree that you should have a 2nd opinion before an operation. Let us know what you decide.:hug: |
My question to you would be do you have function in your right leg and are you able to walk on it? If so, I'd be concerned that freezing then burning those nerves may make you have less function in that leg provided which exact nerves they are,I suppose. Of course, you want no or even less pain, but I'm sure not at the cost of function.
I'll be watching this thread with interest as I often have significant pain in my left hip and mid back and have been thinking about seeking out a pain specialist and wondered in advance what options they might give me. |
Well
Well I am going to talk to my Dr and Neurologist before going this route...Although they can"t seem to come up with any real solution to any of the endless problems that plague me.My family Dr is trying many different drugs even phoning me on a Sunday to see how Oxycontin is working... A Dr really concerned enough to phone this Dr is great!He really wishes there was a pill to take all of this away.So I will be interested in his opinion just wish there were more choices than painkillers and burning out nerves...Thanks for all the comments on this...:hug: Jim
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i'd be interested to know what this procedure is called.
i had something done to my nerve and now i can't remember. but, it was successful. really decreased my pain. it was something to do with the nerve. not freezing but burning the one that was causing the pain. with more input from your drs i'm sure you'll make the right decision. |
Hi Jim,
Was it called Radio Frequency Waves? This is something that is getting popular with pain management doctors lately. You can Goggle it and see if that sounds like what they mean. Good luck. :) |
Hi well just got off the phone with the M.S. clinic..I phoned a week ago and that didn't go well.After voice mails Finally talked to a real person she didn't ask the Neuro..Which after few questions I asked about CCSVI which she raised her voice and said There is no proof it works and hung up....]Hmm that few words has just drove me further in the ground.She phoned today all happy she finally talked to the Neuro Get their report and send the report to him.Nice to get no answer and a little late..Now they want me to go and get it..Then bring it next month..No answer and after four years waiting for an appointment with a pain clinic..They won't wait for me to dance around for another Dr..They refuse to return my calls..I guess I'm at my breaking point....Jim
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So sorry Jim. It sounds like the Neuro and Nurse are frustrated that they don't know what to do for you and instead of admitting that, they turn it around towards you.:mad: I hate when they do that.:mad:
I hope your appt goes well..:hug: |
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