Chiari/ Syringomyelia ( Adult A D D ) support groups
 

Could anyone tell me if there is a support group that you fid encouraging in the Scottsdale/ Mesa/ Fountain Hills Area in AZ?? I would like to find some friends for both me and my 26 year old son who .. like me... lacks the confidence that he needs and deserves.. He's a fantastic person who graduated from U of Minnesota- Twin Cities... Then Taught English for Two Years in Korea ( Without knowing a BIT f Korean to start... Now.. He can speak it, read it, understand it and also the Korean Culture. His A D D frustrates him though. He thinks he's be " better" if he didn't have it.. I swear.. The two of us may have the hardest times making up our minds but be have the BIGGEST hearts... Things just look so interesting.. Maybe there are career counselors for people who struggle with this AND also forget the great gifts that they have inside..
:hug:

Also.. Are there conferences for Adult A D D where you can spend time learning new ways to cope and thrive!!

http://i489.photobucket.com/albums/r...rs-welcome.gif
Sorry, but I can't give you any info about support groups, as I live in Virginia. Maybe someone will come along to give you that info.

I do know that this is a terrific site with lots of friendly, caring, and helpful people. We're so glad you found us!

Link for ADD forum:
http://neurotalk.psychcentral.com/forum39.html

Arnold Chiari forum:
http://neurotalk.psychcentral.com/forum71.html

Hello and Welcome!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

Chiari Malformation which was causing a syringomyelia
 

I am an engineer working for an Irish company in Tanzania and am at a whit’s end and maybe, maybe you can point me in a direction to get advice
I had decompression operation for a Chiari Malformation which was causing a syringomyelia in 2008. To date all MRI’s shows improvement and no significant enlargement of the syringomyelia.
Since August 2010 I started get these stabbing intense pains in the muscles of my lower left back area in a specific spot above my hip and the upper front muscle in my left leg only. It starts with a throbbing pain in the back and base of my scull that feels like pressure builds up and neck muscles tighten. As this intensifies (throbbing pressure pain in the back of my head), the pain in my lower back and upper leg intensifies. At one point was crippling intense and even manifested itself in my upper back between my shoulder blades. After a while I would get dizzy and slight blurriness would ensure affecting my vision. This would last from 5 to 15 minutes and go away with slight blurriness staying on for a short while. This would usually either happen after 2 in the morning while I am asleep or later in the working day, towards 15:00
My neurosurgeon reckoned it was a slipped disc and I got a lumbar injection last week. This week all is fine but today I got the same symptoms, only much lighter and manageable but what gets me is the blurry vision that stops me from working. Have anyone heard of these symptoms, if yes, any ideas.