NeuroTalk Support Groups - IVIG infusions for RSD

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - IVIG infusions for RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/144324-ivig-infusions-rsd.html)

firegirl

02-03-2011 07:54 PM

IVIG infusions for RSD

My doc showed me some data on an RSD treatment called IVIG infusions. It is mainly used on patients with immune system or blood platelet issues. Doc says it is recommended for patients that havent had good results from other treatments. The study info she showed me only had about 20 patients. I was just wondering if anyone has any info about this treatment...thanks!!!

debbiehub

02-04-2011 10:03 AM

Ivig

I am looking into this too. If you google it there was a study in Liverpool that showed some relief using it. I am trying to find a doc who will do it for me. I have a nuero appt in a few weeks....My pain doc does not do IVIG

Debbie

edever34

02-04-2011 02:52 PM

I have the complete study done in liverpool. If you PM me your e-mail address I will try to forward it to you-Carol

firegirl

02-04-2011 04:57 PM

Carol.....is that the same study that only had 13 patients in it? If so, thats a start, but I would like to see more documented evidence before I try it. Definately something to keep an eye on.

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