Antiphospholipid Antibody Syndrome and Myasthenia
 

Hello,
I have generalised MG, diagnosed since 2006.
Recently a sibling of mine was diagnosed with Antiphospholipid Antibody Syndrome. Does anyone know some information regarding inheritance of both conditions? Thanks!

Hi Bluestone,

MG like other autoimmune disorders can run in families.
Is it Hughes Syndrome you are talking about? - sticky blood? Higher risk of stroke etc? If thats the case then yes that can run in families too.

Sorry to be the bearer of crap news

Rach

Yep just checked it is also known as Hughes syndrome and it is another autoimmune disorder.

So yes it runs in families.

Rach

Hi, Bluestone. Ditto on what Rach said.

Yes, APS is very common to run in families, especially families who have a history of autoimmune diseases. You should definitely be checked out for it.

It can be managed well but it has to also be followed by a good doctor. A hematologist would be the specialist to go to.

If you get IVIG or are even considering it, you should be checked for clotting disorders. IVIG can actually dislodge a clot. That's happened to more than one MGer.

Don't freak out, just find out. Get your primary doc to run the test and, if it's positive, then get a referral to a hematologist. Worrying will only stress you and your MG out! ;)

Annie

Thank you Annie!
I have an appointment today with my MG doc and will ask about APS.
You are right, it's important to put the stress away!
Last year was very hard time because I had to help my father, he has Alzheimer and I had to deal with everything related to him. My stress went to a A+ plus scale...
Take care!

Thank you Rach for your replies!
As soon as get more information on what is happening with the APS, I post here.
Take care!