Can you all describe your day?
 

I have a warped view of what I think MS patients can and can not do. I would love to hear what a typical day is like for you all??

I have been dx since Jan 2010, I have not worked since 2007. I spend much of my day sitting on the couch. I do the laundry, and cook most of the meals. I do go out to the store, but I do not go 'shopping'. I really only can handle one hour out at a time.

Thanks :)

You just described most of my days! :o

I don't work anymore (not since 2007). Used to work 60-70 hour weeks.

Since I no longer have a car (got rid of it for financial and health reasons) I usually stay home unless someone picks me up. But that takes a lot of planning on my part. :rolleyes: My usual "outing" is a trip to the grocery store but, like you, I can only handle about an hour. There are usually several days in a row that I don't go anywhere.

I still cook and clean, do laundry, etc. But it's all done in little intervals......when I have the energy. Most of my time is spent either reading, watching TV or on the 'puter. ;)

Me Three..:D Welcome to the "Boring Are Us" club.:rolleyes:

I consider us all "Ladies of Leisure". ;)

As far as what MSers can and cannot do, you might get as many different answers as the number of people who respond!

I know someone who has MS that hikes mountains, works full time, and actually has a life. (And yes, she really does have MS)

I know someone else who has MS who is in a wheelchair, sleeps a great deal of the time, and gets exhausted folding a few towels.

I fall somewhere in that huge "in between".

Most of the time, my life looks pretty normal, as long as you're talking normal for a person 25-30 years older than I am. (I'm 60)

each day can be the same or quite different. Many days I have the energy to clean, cook, chase animals, and go to meetings, and events and see friends and family. There are other days that I am quite tired and when I feel my gas tank running dry, I know its time to schedule some quiet things to do. TV, computer, reading, catch up on phone calls, and the like. Things that dont involve me being on my feet.

I have days that I can walk around the whole block and other days that I dont want to walk to the kitchen.

DX'ed about 3 years ago now, neurologist suspects disease activity for at least 5 years at point of dx, so I figure a good 8 years roughly with the disease under my belt...

I work a full time job and I don't suffer from symptoms day to day, except for sensory like burning/tingling (mostly from the neck up).

Medications for pain can control this for the most part, I do have break through pain though. I've not taken a day off work for 'MS' symptoms since returning to work at the end of 2008.

Everyone's very very different...:hug:

I am still teaching full time at the college level. I am 54. They schedule most of my classes in the morning when I have the most energy. When I get home, I usually will lay down for a few hours or sit and read. Until recently I had a house cleaner so I just did laundry and occasionally cooked for myself. I eat out way too often. I need to find someone else to clean for me because I am having trouble handling it along with school. I plan on taking early retirement next year when I am 55. Most of my shopping these days, except for groceries, is done on line.

I typically do most of my grading on weekend mornings because I am too fried by the evening. Evenings are spent watching mindless tv. I am usually in bed by 9:30 since I have to get up at 6:30.

I wore myself out this morning rotating the mattress on my bed and putting on clean mattress pad, sheets, and comforter.

What my day is with MS has varied through the years.

I was diagnosed when I was 24 years old, married 4 years at the time. I worked, played, socialized. We have moved several times through the years, yes, I am still married to the same man...2 months from 30 years.

We had 2 children who are now 19 & 21. I was a taxi driver for them and their friends, a soccer mom, I took them to Karate, Birthday Parties, swimming, indoor fun zones. I participated in school parties and always attended parent/teacher conferences.

I have a house to run and when we decide, like now, it's time to update I am the one who shops around and/or gets estimates. I still shop...I love shopping :). I get together with friends when schedules match. My husband and I go on vactions, we go camping and go out on dates. I load the RV and my husband unloads and cleans it.

We have always had animals (dogs and 1 cat). I am the one who feeds, takes them to the vet and when the time comes take them and stay as they are put down. I am the one who handles the bills and banking.

I try to exercise at leat 5 days a week.

I also have days nothing gets done.

just curious....how did the person that hikes mountains and works full time, know she had MS??