pins and needles
 

I've recently been feeling pins and needles a lot in my left hand, especially when I wake up. I also have noticed that my hands fall asleep when I'm trying to sleep if I am in almost any position other than flat on my back with my hands at my sides. Have any of you experienced anything similar with your TOS?

Hi Pixified

I have daily pins and needles, numbness in the hands which can also include burning sensations in my hands. This is how I start the day on waking so for me it's normal but for others it may not be constant. I have tried many things to try and stop this and thought I had some success with different pillows (including body pillows) but after a while the benifits stopped working. Keeping my arms beside me while sleeping doesn't make any difference.

Hi Pixified,

This was the first symptom I observed, and I observed it 4 months before receiving a diagnosis of neurologic and vascular TOS.

At worst, I would wake up as many as 6 times each evening with numbness present. The location was the 4th and 5th digits of my left and or right hand, and very occassionally the part of the lower forearm supplied by the ulnar nerve.

Initially a quick shake dismissed the numbness, but it increased in frequency and persistence during the 4 month period prior to TOS diagnosis.

I've found that after wearing to bed soft elbow splints constructed from a fleece and duct tape, which reduces the degree to which my elbow can be flexed, the frequency of numbness is reduced almost to zero.

hm, don't know
 

I am hoping you get some answers, as I'm trying to discern my symtoms like you.
Do you, or does anyone, have arm burning/numbness as soon as you drift to sleep? I have had it two nights in a row. No position is comfortable?
Does anyone have joint pain in elbows, wrists, shoulders?
I feel like I am 70, when I am only 37 and healthy.

Anyone have forearm achiness? Top of forearm, left side is sore these days. I even see some mild atrophy in my muscle mass, the neurologist was not concerned. But I am, as I don't understand if this is nerve impingement based on TOS or what ...

I hope people on here can help. Best of luck.

I had a lot of forearm tension/tightness - after the hand & wrist stuff got resolved, then the forearm stuff showed up more.
For me it was/is due to tension /tightness higher up in the neck and upper back. I get those muscles relaxed and the forearm stuff fades away.