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buckwheat 03-03-2007 03:12 PM

My Update
 
Hi Everyone,

I have a wonderful Doc who is doing everything for me at this point.

I still have not gotten my results from the lyme disease tests. They are testing for co-infections as well. My tests are going to specialized labs.

The Elisa test is very inaccurate for lymes.

But if I don't have lyme. My SX match M. S.

I am frighten to even have a MRI at this point. I was wondering if anyone had a Spect Scan? I am a bit in shock. Hugs, Roz


http://www.mayoclinic.com/health/spect-scan/MM00569

astern 03-03-2007 03:36 PM

very scary
 
Hi Roz,

I'm so sorry you have these possible Dx, be strong and wait for the test results. Big :hug: while you wait. :)

Very interesting vid on SPECT scan - thanks for that! Is this the same as a PET scan? My parents have had this scan for cancer.

Praying for an easy outcome for you,
Anne

dawn3063 03-03-2007 08:26 PM

Oh Roz,
 
I pray with all my heart that you don't have MS.
You have been thru so much already.
Keep the faith. I will be praying for a good outcome for you.
Many Hugs My Friend
:hug: Dawn

ihtos 03-07-2007 12:54 AM

:grouphug: for Roz

buckwheat 03-07-2007 02:25 AM

Hi Folks,

I am still waiting for my results back from 2 labs. One of them is back
east.

About 2 1/2 months ago I was DX with cellulitis in my eyes. On 3
different antibiotics for 6 weeks. Now my right eye is really inflamed
and swollen again.

I was wondering if anyone else has had problems with their eyes, like this?

I also have nausea.
Hugs,
Roz xxx

DiMarie 03-07-2007 09:44 AM

younger son
 
Roz, the younger son had shingles, and it flared twice. Went into the eye.
He had eye medication tube of something, I think to numb, and also the valtrex.

His eye was all swollen and face irratated, we thought it was allergy at first from up at work. It ended up being the shingles.
I took a few weeks to clear up and then a few weeks later, he swelled again,

He had shingles once before across his back. I think like cellulitis it stays in your body, a week area it can flare.
I hope you feel better,
Di

buckwheat 03-07-2007 10:16 AM

Hi Folks,

I am still waiting on my lab work. Some of my blood work went out here.

Our Research and Development department at MDL is comprised of experts in the fields of Molecular Biology, Molecular Virology, Microbiology, Immunology, and Molecular Oncology. Our main theme of research is in the field of infectious diseases with an emphasis on the use of PCR methodologies. Please find below our recent scientific publications--reprints are available upon request. Check back frequently as our research group is actively publishing.

http://www.mdlab.com/html/research/rd_news_events.html

Another out of my area as well. My husband called my Doc I see her tomorrow morning. Hugs, Roz

Stardust 03-07-2007 11:06 AM

Hi Roz
 
Best of luck tomorrow. Hope they find something relatively benign and easy to tame. Will be sending good thoughts your way all day....
Hugs,
Stardust

Jomar 03-07-2007 11:26 AM

My mom got Stevens Johnsons syndrome - it affected her eyes causing infections and corneal scarring.
She also had Pemphigus Vulgaris - they are very similar.
Both are autoimmune conditions.

Just wanted to mention them , just in case.

stevens johnsons
http://www.google.com/search?hl=en&q...=Google+Search

pemphigus vulgaris
http://www.google.com/search?hl=en&s...lgaris&spell=1

buckwheat 03-07-2007 12:13 PM

Hi,
I have brain involvement.:(

I have alot of nausea. My eye is totally inflammed, with puss coming out. I also have severe inflammation thru out my body.

I have been given a Malaria med. but it makes me so sick. I was told it would. But this eye stuff is a worry. Hugs, Roz


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