Need help before Neurologist appointment
 

Hi everybody,

I am going to my new neurologist next week and I just need some help before I go.

What happened was I began to have seizures back two years ago. I continued to have them for many months and I was referred to an epilepsy unit for 3 weeks of continuous video eeg monitoring. In the end the doctor said over my first three days I had abnormal epileptic-type activity and abnormal non-epileptic type activity. Although my seizures happened not during these periods and was deemed pseudo-seizures.

I was later diagnosed with Celiac Disease. My doctors think this was the cause, but I'm not 100% sure since I still had some abnormalities shown.

1. Should I bring in the papers showing the abnormalities over the first three days to show the neurologist, or is it normal for people to have abnormalities and since I didn't have a seizure at those moments, it should be ok to leave it.

Thanks a lot for your help!!!

I just realized I left out the most important question:

Is it normal for epileptiform and non-epileptiform abnormalities to show on long-term EEG's? My notes say that mild epileptiform and non-epileptiform abnormalities were seen over the first three days, but not associated with seizure activitity. Is this normal or almost always points to something underlying?

Thanks again :-)

Hi stilltired,

Welcome to the forum! My advice to you is to take any medical info. you have to your neurologist. In some cases celiac has caused seizures for people. The best thing for you to do is to write down on a calendar what time of day/night you have any seizures along with a discription of the seizure. Also take note if the seizure happened when there was a low pressure in the weather or if you have been sick or very tired and stressed out these are the main things that can trigger seizures not to mention hormones changing.
If you are not pleased with the neurologist I would see an Epileptologist (Dr. specializing in epilepsy). I've seen many neurologists over the 39 yrs. I've had seizures and I found that the Epileptologist did the best for me. You can go to an Epilepsy Center which are usually at University Hospitals to find an Epileptologist. These Drs. work together with a team of other Drs. like a neurosurgeon and neuropsychologist all these Drs. will do tests on you and they will be able to pinpoint the exact cause of your seizures and if they are regular seizures or psuedo seizures. Start taking vitamin B12 once a day 1000 mcg. and cut back on the carbs and starch foods this will help you. I wish you the best of luck and May God Bless You!

Sue

Hello!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways. Looks like Sue has gotten you started.

I had a wonderful Neuro here and he was the one after treating me for a while to a wonderful Epileptologist which help me greatly. I then returned to my neuro here in town and he has all ways been here for me. This past fall he left and recommand ather one which is an Epileptologist and he too is doing a great job with me. I will agree with Sue on keeping a log on your seizures for some assistance for the neuro.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug: