NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   neuropathy and joint hypermobility? (https://www.neurotalk.org/peripheral-neuropathy/147526-neuropathy-joint-hypermobility.html)

adelina 03-29-2011 04:49 PM

neuropathy and joint hypermobility?
 
Does anyone have both of these problems at once?

Joint hypermobility is related to Ehlers-Danlos syndrome

I have a mild case and wondered is it related to my condition with ganglioneuritis

mrsD 03-29-2011 05:08 PM

No diagnosis is cast in stone. Your real problem may be the joint hypermobility, causing your pain.

There is no way to prove the ganglioneuritis... but the Ehlers I believe has a genetic test.
http://www.mayoclinic.com/health/ehl...-and-diagnosis

adelina 03-29-2011 05:48 PM

Thanks mrsD
I will check it out, but I don't know if I have Ehlers-Danlos, but a Rhuem has told me I do have HMJS. Thank you for website lead, according to it - HMJS is still an E-D sydrome. I am going to a new rheum I think and have some of these done.

melon 04-05-2011 09:22 AM

Quote:

Originally Posted by Blaine (Post 757434)
Does anyone have both of these problems at once?

Joint hypermobility is related to Ehlers-Danlos syndrome

I have a mild case and wondered is it related to my condition with ganglioneuritis

I have HMS , and neuroapthy , i cant say it worsens when my joints are worse , but then my case is not typical so probably useless to you.

I have found some reliefs using supplements suggested by the like of MrsD and others here over the years but I tend to find sometimes - after longer use the effects seem to wear off like nootropics.

I found some relief with rebuilder before it started giving me tinnitus but aside from that only weed ( which was like bliss ) the odd time i tried it.

hope this helps

:)

m

mspennyloafer 05-01-2011 02:03 PM

i have ehlers danlos and thoracic outlet syndrome (which I believe is mild) and i think a stretch injury to my brachal plexus

anyways, i think the ehlers danlos is keeping my body from healing properly. im desperate, going to try taking vitamins for awhile. im experiencing muscle atrophy which is making the tos worse but i can't do strengthening AT ALL because it fires my nerves up.

catch 22


All times are GMT -5. The time now is 07:47 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.