Gilenya Study
 

There is a Gilenya study in Elk Grove, IL starting up soon. My neuro said it was ok if I wanted to try, so I am going to. They are comparing satisfaction levels with DMD's not effectiveness. They give med for 6 months. There is no placebo and it is an open study so you will know which med you are on. I saw the ad in today's Chicago Tribune. It's for RMS. If I get selected, I'll keep you posted.

Hi Mochagirl. Cool, I'm interested to read about your experience with that drug if you get selected. I used to live in Elk Grove, Elk Grove, CA though in Laguna Creek. :) I know it's different but it make me feel sort of closer to you. :winky:

Off the injections!!!
 

I got selected for Gilenya. It's only been 2 days but I feel like a ton of bricks have been lifted off my chest. I don't feel the impending dread of taking an injection and I feel like I have a piece of my life back.:D

Thank you for trying this study. I hope it helps you and all of us! :hug:

I'm glad it seems to be helping you Please keep us posted, MG..:hug:

It's been a week
 

It's been a week since I started taking gilenya and so far no side effects. :) I go get my blood work done on 7/11.