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-   -   Hello Everyone, I'm Brand New (https://www.neurotalk.org/new-member-introductions/148086-hello-im-brand.html)

JBlom 04-07-2011 06:48 PM

Hello Everyone, I'm Brand New
 
Greetings, everyone! It is very nice to be a part of this site finally. Truth is, that I've thought about it for a long time. I am a 42 year old father of 2(7,9) and am fighting the same battle as you folks! I was diagnosed with IPN about two years ago when I began to experience tingling and numbness all over my body. Naturally, I thought it was associated with the herniated disc I have in my neck(c-5/c-6), but apparently that isn't possible according to my doctor! In these two years, my life has changed quite a bit. The occurances of the symptoms seem to be almost constant recently(5 months)
tingling, heaviness in the legs, buzzing, tinnitus, aches and pains in my muscles and joints, cramping, burning sensations, the usual suspects! I have had MRI's, CT's, blood tests, diabetes tests, and the only thing that wasn't "normal" was my Vitamin D. However, I don't know if that is true or not. I am trying to get another appointment with my neurologist but that is 4 months out(small town life). My reason for being here is to garner advice and guidance on how to deal with this from the people who live it every day!!!!!! Now the questions:

Has anyone had success with vitamin supplementation, and if so, what types of supplementation?

How about medications? I am not a medication taker usually, but these symptoms have me re-thinking things.

Any therapies to consider?

I have kind of started to get discouraged because of the way things have deteriorated recently. Two nights ago was the worst night I've had with this condition, it was brutal!!!! The absolute worst thing for me is to try and explain this thing to my wife and loved ones, they don't seem convinced!!!!!

Thank you all!!!!

Brooklyn's Best 04-07-2011 07:11 PM

Hi and welcome...I am taking Oxycod for pain...I have taken several Parkinson meds and one for MS (I have CIPD) but none were helpful...I took Cymbalta for a short period of time, again with no effect...so as you can see I am not the best one to ask for effective meds..I go for PT and massage and find them very helpful...hope you find treatments that help and that you continue to find caring and support here...J

Blessings2You 04-07-2011 07:17 PM

Hi there, and welcome to the community! You'll find lots of support here and probably make some friends as well. If you haven't found the PN forum here, this is the link: http://neurotalk.psychcentral.com/forum20.html

But feel free to jump in anywhere! We have some social chat anf fun forums as well.

Darlene 04-08-2011 01:19 AM

Hello!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:


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