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tiredinaz 04-11-2011 07:53 PM

Hello
 
I'm new to this group, but noticed lots of interesting things being discussed. I don't have a dx of ms, just "possible". I've been dx'd with fibro a long time ago (not going to tell you how long) and only wiithin the last couple of years when my dizziness and failing eyes got the pcp's attention did I get an MRI of my brain and spine.

Some lesions showed up in my brain, but the neuro says they're not consistent with ms. I have many symptoms of ms and have had for years, but have not had anyone mention the possibility of ms until I finally went to this neuro.

So I'm wondering and waiting, but whatever this is, I suffer a lot and I know this isn't going to get better no matter what. Double vision and falling, we well as unending pain have robbed me of my life. Your feedback will be appreciated.

Linda

Twinkletoes 04-11-2011 10:00 PM

Welcome, Linda!

Sorry for your health issues, but this is a good place to come for answers, comfort, and friendship.

I am not a doctor. I was dxd with MS 3 years ago. I did take a DMD (Copaxone) for several months, but grew tired of the daily injections.

I've been on LDN (Low Dose Naltrexone) for 2 years now. I think it helps me with my energy level. It is used for several applications, including Crohn's and AIDS/HIV patients. Here is a website: http://www.lowdosenaltrexone.org/

Also, we have a thread here at NeuroTalk: http://neurotalk.psychcentral.com/thread71392.html

I don't know whether this would be helpful in your case, but if you're like me, I like to know what other options that may help. Dr. Skip Lenz of Skip's (compounding) Pharmacy in Florida says he takes LDN daily as a prophylactic.

Best wishes to you! :hug:

Darlene 04-12-2011 01:10 AM

Welcome to the family!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:


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