chiari malformation 1
 

I had decompression surgery 5 weeks ago. After getting my stichers out, there was a lage lumpnext to the stitchers. We just thought it was swelling, It had not gone by week 4 it felt like jelly and it was incomfortable to lean on anything and it was getting bigger, Went to hospital, had ultra scan done and they found a leak from the inside, a small hole, They decided to put compression bandage on. The lump went down , was still like jelly, and after it was of for 30 mins, it seemed to come back and my head is hurting more then normal, I would like to know why this is happening and should i be worried.

WELCOME TO NT

So sorry you have been through so much. My heart goes out to you.

There's lots of info here. It can be overwhelming.

You can use the "SEARCH" button above for a starting point.

I pray things get better GODSPEED.

Hello and welcome to NeuroTalk
 

Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great and caring friends here to assist you. Our shouders are here for support in many ways. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Hi Broken Wing,
I have ACM1 as well. i did not have the problem you are having, after my MCA surgery I am leaking fluid. My surgeon said we will wait 3 more months to see if I heal, that is coming up this month. I just noticed this ACM/MCA, they are opposite.
I had my surgery in 2002, if you have any questions, please feel free to email me. I am unable to give my email address **

Good luck to you,

James

Hello pisha im not sure why this is happend but im sorry you are hurting i do know sometimes with acm dc surgery you can get a csf leak an they will fix it i to have acm1 had dc surg over 7mths now an still i have pocket of fluid hang in there hope everything is ok it will take some time to heal

thanku,
for all messages, they are just what i needed,:wink: