Spinal Myclosis and RLS
 

Hi all,
I am a proffessional heli pilot and I was diagnosed with rls about 20 years ago but only when it got worse about 4 years ago i sought help. My neurosurgeon did all the tests possible, scans, mri, x-rays, blood work and 3 days and nights at a sleep clinic. Eventualy i started to spasm in my arms and legs. Now i jerk from my torso( jackknife) which is exremely painfull. I have been put on different medication, Epilin, Requip, sinemet, rivItrol neuronton and with diff dosages.Eventually they all wear off and then I sometimes go 3/4 days of no sleep. Anybody out there with any ideas that may help will be appreciated. Being a pilot I have to be careful what I TAKE AND WHEN.:

maybe you need to get on ssi this is not something that goes away sorry to say but mine has gotten worse through the yrs good luck tonijo

Have you tried taking magnesium supplements and/or soaking in Epsom salt?

Hello
 

Hi there,

I have the same kind of symtoms as you and also they can't find a thing in my brain.

I can't really help you, but I have a blog about my problems, maybe you find something there what will help you. sophiebrain.wordpress.com. if you have questions of want to mail about it (writeing helps) just let me know.

Are you still working? Changing you daily routines helped me a lot in the beginning. Now I also have Parkinson and anti-epileptic medication.

Bye Sophie