NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Anyone got 2 SCS? (https://www.neurotalk.org/scs-and-pain-pumps/149657-2-scs.html)

Sophie_ 05-05-2011 04:30 PM

Anyone got 2 SCS?
 
Hi there,
I had my first SCS implanted last December on my left side for lower back and left leg. Anyway since having the perm SCS it has changed my life, turned things right around for me, I'm feeling so much better but unfortunately my back pain is still a huge problem. My consultant is considering adding more leads to my right side and another box. Has anyone here had a second unit put in and how was it, did it do what you and your Dr had hoped?
I'd love to hear your experience.
Sophie

irljenn 05-05-2011 05:23 PM

Hi Sophie!

i also had my scs put in in december and mine works great for my back but not for my legs. My doctor has also decided to put in another scs for my legs later this year ! i have crps which is spreading

Rrae 05-05-2011 05:29 PM

Hello Sophie!
 
Welcome! :hug:

It's good to have you and I hope you'll find good support here! A very caring bunch indeed :)

I'm glad to hear you are doing so well with your unit. And yes indeed, there are several here who could be very helpful in sharing about having 2 SCS's.
Stick around and you'll no doubt get input.

Caring!
Rae
:hug:

anon21816 05-06-2011 12:30 PM

Hi Sophie
 
Quote:

Originally Posted by Sophie_ (Post 767926)
Hi there,
I had my first SCS implanted last December on my left side for lower back and left leg. Anyway since having the perm SCS it has changed my life, turned things right around for me, I'm feeling so much better but unfortunately my back pain is still a huge problem. My consultant is considering adding more leads to my right side and another box. Has anyone here had a second unit put in and how was it, did it do what you and your Dr had hoped?
I'd love to hear your experience.
Sophie


Hi Sophie :)

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie :)

Sophie_ 05-06-2011 01:59 PM

2 scs
 
Hi guys,

I've been looking for a forum like this for ages and I'm delighted to find one with like minded people who can relate to the pain, depression and sheer frustrations that go with chronic back pain.
The technician will tweak my back settings in two weeks as she's on holidays, I'm also hoping to go through another pain management clinic before any final decision is made.
At the moment the Medtronic system is working great for my left leg but my back is still pretty horrible. The Dr is considering putting the Navroe system for my right side and I guess that there are no guarantees that it will help for my back. I haven't made my mind up on anything yet so please if you see anyone on here with two SCS's will you pass me their link so I can get some more advice from them.

Thanks again for your replies and no doubt yee will be hearing from me alot!

Chat soon

Sophie


QUOTE=Jackiey;768202]Hi Sophie :)

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie :)[/QUOTE]

Sophie_ 05-06-2011 02:02 PM

Who is your Dr
 
Hi guys
I've just realised yee are in Ireland too. Dr Declan OKeeffe is my Dr who is yours, probably Declan too? I find him great compared to some eejits I've seen!
Sophie, Kildare

anon21816 05-06-2011 02:16 PM

Quote:

Originally Posted by Sophie_ (Post 768253)
Hi guys
I've just realised yee are in Ireland too. Dr Declan OKeeffe is my Dr who is yours, probably Declan too? I find him great compared to some eejits I've seen!
Sophie, Kildare

Sophie Ive sent you a private message ok

Jackie :)

anon21816 05-06-2011 02:18 PM

Ooops cant actually sent you a PM.....

Id rather not put my Dr's name here on the boards Sophie......Im in Dublin . I think Ive heard of your guy.I know there is a girl on here Irljen....and she has the Nevro system...

Jackie

irljenn 05-06-2011 04:28 PM

Quote:

Originally Posted by Jackiey (Post 768264)
Ooops cant actually sent you a PM.....

Id rather not put my Dr's name here on the boards Sophie......Im in Dublin . I think Ive heard of your guy.I know there is a girl on here Irljen....and she has the Nevro system...

Jackie

sophie i have sent you a pm ( well i think i have) if you respond to that i can chat with you i have the nevro for back pain and it works fantastic and i have no problem speaking with u about it. but would rather do it through private message.

Chemar 05-06-2011 04:46 PM

Hi everyone

just a reminder that we have a default number of posts here before newbies can PM or post links. This is to protect you all from some pretty vile PM and post spam. So we * all * new members have to pass through this short "probation" for the overall good of all. Spammers wont stick around once they realize they can't link or PM their spam, but real members soon have enough posts to have all member privileges :)


All times are GMT -5. The time now is 08:40 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.