NeuroTalk Support Groups - Now going 5 months E-free!

I haven't vanished or disappeared, just been busy
working alongside with Microsoft (MSFT) with some
issues; and *laughing* go figure - back into BETA
again ...

To make this all exciting, while true; last year had
ended up (possible SE {Status}) where my son had
to phone my Primary up. To make the long story short,
I was seizing; the ER Doc and Staff knew me well,
having known me from the main Hospital (they were
at this Hospital because of the Flu outbreak and Staff
shortages); enough was enough.

Reality, there is nothing wrong with my Neuro who had
been treating me all this time; the only problem was -
he was just too far away, having been stretched thin
in serving so many Counties and via Satellite Offices
(that which I was in), it was difficult for the Hospital
to reach him. Nothing against him or his staff, I still
refer him and the office to others, especially those who
are much closer to him than I.

The Administrator; while true the Primary can admit
me, but he cannot provide the "Neurology orders" which
was the problem, and while they did get the seizures to
stop - had a T/C right smack in front of everyone and
prior to that was having seizures in my residence, in
the ambulance, and in the hallway and who knows where
all - they told me but not too much though.

The ER Doc and Administrator were looking at my
historical records and found two of my old Neurologists
who are Epilepsy experts who were LOCAL, meaning
they could call upon him in such situations like this.
I could understand in spite of not fully being there,
of what they were implying, the need to go back to one
of the two old Neuros, the need was imperative. I wanted
to talk it over with my Primary first.

My Primary agreed, having a local one was better; for
in event of Emergency, they can touch bases with him.
So I returned back to the one I knew the most and had
the most confidence in, which my mother arranged the
appointment. I honestly felt bad because I never wanted
to leave the other (talk about being in a rock and a hard
place for he knew me and I knew him, likewise so did the
other 2 that the Hospital recommended; I HATE GOODBYES!)

Nevertheless, once I saw my (Old) Neuro, he recognized me
instantly (am I a face one cannot forget? LOL!!) While his Staff
was going to have me fill out a myriad of papers; he told them
it wasn't necessary, he already knew who I was. Of interest,
so does my Primary - both of them knows each other as well
as I know them, going back nearly 3 decades ... *laughing*.

The first appointment was more of "let's play catch up", for
he already knows what I have; with the second appointment
with scattered medical records of various years and thereon
including others - which he didn't want a mountain, and knowing
him well, he wanted specs (specifics); so this was a hard work for
me to go through since the last time seeing him. While he is aware
of the HMO Insurance issues that went on due to my ex-husband,
I reported that to him of a sad note of how it all had to end, now
being divorced. My mother liked him very well; but he reviewed
the medical records and was pleased for it was what he wanted,
without all those "excess baggage".

He was puzzled as much as Cleveland Clinic (as he was associated
with them being an Associate Professor there) and several others
(another Epi and a very highly regarded Neuro) when they placed
me on the right dosage and being E-free, as why I was dropped
down 100 mg and why the Neuro would rather have me experience
seizures didn't make sense to him but he could see it at the Hospital
(via the computer records). He put me back up where I belonged,
the only difference from "back then" and "today" is the Clonazepam,
was not on that high titration on that med along with Zonegran.

Surprise, he knew what he was doing with I think now, almost 40
years of expertize in this field (Epilepsy); he knew what he was
doing in spite of my nervousness about going back up on Zonegran
to where I am supposed to be but being on Clonazepam at the rate
I am now in comparison to back then. He knew me well, and told me
"One thing at a time" and had the expression of assurance that he
knew that this was the right dosage of medications for the seizure
control.

On the third visit, so overwhelmed; more excited than anything,
that this was working, yet, he knows me very well; that based on
my med history and my body (chemistry - hematology) this could
collapse; after three months the third visit - learning I had not had
any seizures and everything was going well. I was honest, it did take
me some time during the "honeymoon" phase to get adjusted there
which I perceive it might be due to the Clonazepam being at this
higher dosage than before for I never had any problems with the
increase or reduction of Zonegran by 100 mg.

Now, it is 6 months before I see him again - everything stays intact;
and to see how it all goes and so far it is going great, and I hope
and pray to God it continues this way. Even those at CVS Pharmacy
and their Chief Pharmacist remarked they praised GOD for this big
change - they can see it all.

I have had so many compliments on this feat, it is just so nice for
a change. Give God the glory!

:grouphug: